Tag: DDS

El Arc de California’s Community Advocacy Initiative Drives New Statewide Transparency Measures

Over the past year, from January 2025 through February 2026, the El Arc de California team and its statewide network of advocates expanded advocacy training, outreach, and community engagement for families across California. This work focused on empowering parents and caregivers of children and youth with developmental disabilities—ensuring families have the knowledge, tools, and support needed to advocate for the services their children need to thrive. This work was made possible in part through support from The Lucile Packard Foundation for Children’s Health.

Throughout the year, El Arc de California prioritized increasing access to advocacy education—particularly for Spanish-speaking families who often face barriers to participating in policy conversations. In September 2025, the team launched a bilingual Advocacy Academy webinar series to help families understand their rights, navigate services, and engage confidently in advocacy. Each session was offered in Spanish with English and ASL interpretation, with recordings available for continued learning. The series reached more than 600 registered participants, with an average of 150 attendees joining live per session—demonstrating strong statewide demand for accessible, culturally responsive advocacy training.

Through bilingual newsletters, targeted email outreach, social media, and partnerships with community organizations, El Arc de California reached thousands of families across the state and welcomed many parents into advocacy spaces for the first time. Families gained practical tools to actively participate in Individual Program Plan (IPP) meetings, communicate with decision-makers, and advocate for critical services. This level of engagement highlights the importance of building accessible pathways for families to step into leadership roles within their communities.

In April, El Arc de California convened a statewide gathering of more than 50 organizations as part of the El Arc leadership coalition. Together, participants worked to develop a unified message around services and supports for Latino children with developmental disabilities and to advance equity across California’s developmental services system. This effort focused on strengthening the capacity of Latino community leaders to communicate effectively, mobilize families, and drive collective action. As part of this initiative, a digital advocacy toolbox is being developed with shared resources—including letters to legislators, media templates, social media content, and outreach materials—to support coordinated advocacy efforts statewide. This work contributed to a statewide campaign that gathered more than 1,700 signatures in support of AB 1220 (Arambula).

Building on this momentum, the El Arc de California advocacy network played a central role in advancing AB 1220, legislation sponsored by the organization to increase transparency and accountability in California’s developmental services system. Parents and advocates who participated in trainings elevated the urgent need for clearer documentation when services are denied or delayed. Families shared their lived experiences, engaged directly with policymakers, and organized within their communities to push for systemic change.

Although AB 1220 did not ultimately pass, the collective advocacy behind it led to a significant outcome. At the end of 2025, the California Department of Developmental Services issued a statewide directive requiring regional centers to track and publicly report data on service denials, disagreements, and notices of action.
Learn more: https://thearcca.org/from-advocacy-to-action-dds-will-now-track-and-report-service-denials/

This directive marks a historic step toward transparency and accountability—creating, for the first time, a statewide mechanism to understand patterns of service denials and strengthen families’ ability to advocate effectively. It reflects the power of sustained, community-driven advocacy.

In December, the Latino Disability Leadership Summit provided an opportunity to bring together coalition leaders, parents, and self-advocates to reflect on this work and the progress achieved. The summit served as a moment to recognize the journey from training and organizing to policy impact, while also setting a shared vision for the next phase of advocacy focused on advancing equity and improving access to services for Latino children and families across California.

Across all of this work, one theme remained clear: when families are informed, connected, and supported, they become powerful advocates for change. This year strengthened a growing network of parents and community leaders who are not only navigating systems—but actively shaping them.

The Arc de California extends its appreciation to community members who participated, shared their stories, and took action throughout the year, continuing to move this work forward.

From Advocacy to Action: DDS Will Now Track and Report Service Denials

Families across California have long raised concerns about service denials, notices of action, and disagreements during Individual Program Plan (IPP) meetings—often with little documentation or transparency to support informed advocacy.

In 2025, El Arc de California worked alongside Assemblymember Dr. Joaquin Arambula to advance AB 1220, legislation aimed at improving transparency by requiring service denials, notices of action, and appeals to be documented, tracked, and publicly reported. While AB 1220 did not pass out of the Legislature, the advocacy behind it sparked meaningful change.

On December 31, the California Department of Developmental Services (DDS) issued a statewide directive requiring regional centers to begin collecting and reporting detailed data on service disagreements, denials, and notices of action that occur during IPP meetings—information that has never before been systematically tracked or made public. Starting with the 2026–27 fiscal year, this data will be compiled annually, with public reporting beginning in December 2027.

In this week’s Arc Beacon, Joe Perales, Director of El Arc de California, breaks down why this directive is a historic milestone for families, advocates, and the disability community—and how collective advocacy helped move the system forward, even without a bill becoming law.

Watch the full Arc Beacon video to learn why this win matters and what comes next.

Everything You Need to Know About The Government Shutdown from DDS

Today is the sixth day of the U.S. federal government shut down. Pay has been suspended for roughly 2 million federal workers, with approximately 750,000 ordered not to work and others, such as troops and air traffic control workers, are required to work without compensation until a budget deal is reached.

The federal government provides significant funding to support individuals with developmental disabilities and families, through multiple programs. As of October 1, 2025, federal funding has lapsed. State funding for the California Department of Developmental Services (DDS) programs already has been approved through June 30, 2026. In an effort to keep you informed of potential impacts, shared what the lapse in federal funding could mean:

  • Supplemental Security Income (SSI) payments will continue, although customer service at the Social Security Administration could be impacted. SSI is not impacted by the federal shutdown. SSI is a vital program for many people in California, including individuals with intellectual and developmental disabilities.
  • Medicaid, called Medi-Cal in California, is funded by the State through June 30, 2026, and by the federal government through the end of December 2025. This year, 37 percent of the funding for developmental disabilities services comes through Medi-Cal. While we do not anticipate immediate disruptions, a prolonged shutdown lasting past December 2025 could affect the availability of federal funds.
  • Supplemental Nutrition Assistance Program, called CalFresh in California, October 2025 monthly benefits would be unaffected, according to guidance provided by the U.S. Department of Agriculture’s Food and Nutrition Service. The California Department of Social Services continues to track developments at the federal level and assess potential next steps.
  • Federal agencies must have plans in place for operating without a federal budget. Based upon various laws, it is likely that many federal employees will not be working and will not be paid, so access to information, technical assistance, or other communications with the public may be limited during the shutdown.
  • “Essential” employees, as defined in each federal agency’s plans, will continue to work and be paid. Defense and law enforcement agencies often continue their work. Many Medicare employees are expected to continue working. Many Medicaid employees are expected to continue working too, at least through December 31. The Food and Drug Administration is expected to continue its oversight of drugs and devices. The public can expect less help and slower help from other federal agencies during a federal government shutdown.

We hope this information is helpful. We will share new information with you as it becomes available.

DDS Director Nancy Bargmann Announces Retirement

After more than 40 years of serving Californians with developmental disabilities in various roles, Nancy Bargmann, Director of the California Department of Developmental Services (DDS) announces her retirement.

Bargmann, who began her role as Director in 2016, said she will begin retirement the first of September in a public announcement on Wednesday, July 24. In her announcement she also noted some key accomplishments during her eight-year tenure.

“Together, we closed all of California’s developmental centers while building inclusive community services. We faced and withstood a pandemic, ushered in unprecedented growth, and expanded person-centered services and supports to a growing and diverse population from 300,000 in 2016 to over 440,000 today,” Bargamm wrote.

In a statement made from Dr. Mark Ghaly, Secretary for the California Department of Health and Human Services, thanking Bargmann for her many years of service and commitment, he wrote “Nancy’s incredible leadership and efforts have better positioned the state to modernize the developmental services system through the development of California’s Master Plan for Developmental Services and the implementation of the rate study. The Newsom Administration is committed to continuing this important work, with the final Master Plan to be released in March of 2025.”

Bargmann began her career as a Direct Support Professional (DSP) in 1984. She went on to hold several positions and leadership roles at regional centers, service providers, and the State, including as associate executive director at San Gabriel/Pomona Regional Center and deputy director of the Community Services Division at DDS. Bargmann was appointed Director of DDS on March 4, 2016, by former Governor Edmund G. Brown Jr. and reappointed in 2020 by Governor Gavin Newsom.

“Throughout the years as Director of DDS Nancy demonstrated her administrative and political skills, but it was clear to all that she never forgot her social work background, said Jordan Lindsey, Executive Director, The Arc of California. “She will certainly leave behind a legacy of collaboration and community involvement.”

Direct Support Professionals Can Now Get Trained and Get Paid

By Jim Frazier, Public Policy Director, The Arc / UCP California Collaboration 

In an effort to recruit, train, and retain Direct Support Professionals (DSP) who provide vital supports and services to individuals with developmental disabilities, the California Department of Developmental Services (DDS) has launched the DDS Workforce Initiative. They are offering compensation to DSPs who take their training courses. This is a great opportunity to expand your skill set and get paid for it! Eligible DSPs who work 10 or more hours a week for a regional center service provider can now receive up to two $625 stipends (before taxes) if they complete the online training courses approved by DDS before June 30, 2024.

For a DSP to be eligible, they must meet these requirements:

      • Work as a paid DSP an average of 10 hours or more per week
      • Perform direct support tasks like skills development, guidance, and personal assistance to individuals served by a regional center as a regular part of their job duties
      • Spend at least 50% of work hours doing direct support tasks; and
      • Are employed by a regional center vendor, or by a participant in the Self-Determination Program.

DSPs may access approved online training courses through the ARCA Learning Center (ARCA Learn) at Provider.ARCALearn.org. To obtain the first training stipend, DSPs must complete the Code of Ethics training. DSPs can receive a second stipend after they complete an additional DDS-approved course. While multiple training courses are available, DSPs will only receive a maximum of two stipend payments.  DSPs will need their employer’s vendor number, the vendor’s name, and the regional center associated with the vendor number. DSPs should ask their employer for this information before attempting to register for the Training Stipend Program. It is the DSP’s responsibility to ensure the vendor number used to register on ARCA Learn is accurate.

A list of Department approved online courses can be found under the DSP Training Stipend Program HERE.

Click HERE to download the flyer.

Please share this information with anyone who you think might qualify.

A Successful iPad Lending Project for Spanish-Speaking Parents of Children with Disabilities in Fresno

The Arc of California is thrilled to announce the successful completion of the first digital literacy iPad class and lending project at Fresno State University! Congreso Familiar and The Arc of California partnered with Fresno State University to provide Spanish-speaking parents of children with disabilities with a four-week iPad class where they learned important digital skills that are becoming increasingly essential in today’s world to access services and supports. From basic literacy to more advanced topics, the parents gained a wealth of knowledge that they can now use in their daily lives as they continue to advocate for their children with a disability.

All parents who completed the certificate program were committed to learning and have left with a valuable set of skills that will serve them well in the future.

Fresno State University staff did a fantastic job of imparting their knowledge and experience to the parents and helped make the course both informative and engaging. The iPad lending project and classes were made possible by the California Department of Developmental Services.

The Department of Developmental Services Released its New Information Packet on Early Start Services

The Department of Developmental Services has released its new Information Packet for Consumers and Families, on Early Start services. This is the first of two standardized information packets being developed. They will help support regional centers in ensuring all families who are potentially eligible for services learn about how their center can serve them and their family member!

This first packet focuses on children ages 0-3. The second, which will be available this summer, will be about Lanterman Act services. The packet is also available in Spanish, Korean, Simplified Chinese, Tagalog, and Vietnamese. English and Spanish audio options, as well as an ASL version, will be available soon.

The Department of Developmental Services Releases Updated Safety Net Plan

By Teresa Anderson, Director of Public Policy, The Arc/UCP California Collaboration

The Department of Developmental Services (DDS) published an updated Safety Net Plan that provides an overview of the progress made and the efforts to implement statewide changes and improvements to California’s continuum of safety net services for individuals with developmental disabilities, as well as plans for addressing future needs in the community. The updated plan (2023) continues to examine the safety net continuum of care and expands the focus from crisis services to emphasizing the priorities on prevention, de-escalation, and abuse awareness, as well as continued efforts to improve access and equity and respond to the system’s changing needs, i.e., the supports needed for an aging disability population, aging caregivers, individuals diagnosed with Autism Spectrum Disorder (ASD), youth in foster care who have severe trauma, individuals affected by fetal alcohol syndrome (FAS), and other individuals with complex needs.

Additionally, the updated plan includes recommendations from stakeholders to prioritize the need to expand and strengthen several areas within the Safety Net including Abuse Awareness and Prevention, Aging Caregivers, Aging Individuals with IDD, Autism Services, Children and Youth in the Child Welfare System, Crisis Services and Supports, Cultural and Linguistic Diversity, Complex Support Needs, Fetal Alcohol Spectrum Disorders, Partnerships with First Responders and Mental/Behavioral Health Professionals, Prevention and De-escalation, as well as Future Data Needs. In addition, the updated plan provide an overview of Governor Gavin Newsom’s proposed investments that continue to build on previous investments aimed at strengthening the Safety Net continuum of services. The updated plan can be found here: https://www.dds.ca.gov/wp-content/uploads/2023/01/DDS-Safety-Net-Plan-Update-Final-1-10-2023-posted.pdf

Department of Developmental Services Issues New Directive on COVID-19 Policy

By Teresa Anderson, Public Policy Director, The Arc/UCP California Collaboration

On September 14, 2022, the Department of Developmental Services (DDS) issued an update to the COVID-19 policy to align with California Department of Public Health (CDPH) guidance. Several public health orders have either been repealed or amended, most notably, the repeal of orders that required weekly testing for unvaccinated employees and schools. As of September 17, 2022, unvaccinated employees in health care, long-term care, high-risk congregate care, and other health care settings, along with school personnel will no longer be required to test weekly for COVID-19 [unless required for federal compliance]. There are several other orders that have been amended, however, existing vaccination and booster requirements have not changed. In addition, masks are still required in some settings including health care, long-term care, senior care, state and local correctional facilities, and homeless shelters. There are significant changes to many COVID related polices as well as recommendations for preparation in the event of future surges in COVID. Policy changes and guidance can be found here: https://www.dds.ca.gov/wp-content/uploads/2022/09/COVID_19_Policy_Updates_09142022.pdf

Symposium on Innovative and Alternative Services in Action

The Department of Developmental Services (DDS) is working hard to address inquiries from individuals with intellectual and developmental disabilities, family members, and service providers related to alternative services. DDS has worked with several community partners to showcase real-world examples of innovative services that are specifically developed to meet the individual needs of people while making safety a priority during the COVID-19 pandemic. The next two symposiums will be on November 4, 2020 in partnership with Friends of Children with Special Needs, and November 12, 2020 with the State Council on Developmental Disabilities. You can learn more about the symposiums and register at https://www.dds.ca.gov/corona-virus-information-and-resources/.

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