The Evolution of Motherhood: A Personal Reflection

By Pat Hornbecker, President, The Arc of California Board of Directors

Grandmother is a label I have come to cherish because of the children—some now adults—and their parents, who have included me in their families’ lives so intimately and with such love that I feel I truly belong. It was never a deliberate aspiration to become a grandmother; those decisions were not entirely up to me. I travel through numerous “grandma” names, as many grandmothers do. There is always a story behind how these names came to be, each reflecting the loving relationships, cultures, and styles of our family. My favorite name is “Mom-Mom” because I am mom’s mom! The journey has been nothing but joyous.

Mother was a title I did aspire to, though I had no idea of the challenges or rewards that lay ahead. Motherhood was also somewhat of a family expectation—to grow up, marry, and have children— in that order, of course. Those were the days when a woman’s life was guided by many rules and restrictions—regarding her livelihood, career potential, partnerships, affiliations, and aspirations. I watched the birth of the “women’s liberation movement,” which gave rise to freedoms never spoken of before. We began questioning the status quo and reaching for goals previously reserved for men. This movement brought us hope and infused a sense of creativity and adventurousness many of us had never felt before.

Of course, many other revolutions were happening at that time. We challenged the rigid rules of the past and asserted new ideas and theories about how the world could be. I watched in awe as the civil rights movement grew stronger, giving voice to those who had been ignored or worse. I witnessed the passage of laws ensuring equal access for people with disabilities. I felt the sincere passion of families pleading for their children with disabilities to be included and educated alongside their siblings and peers. We were testing all barriers to freedom while still striving to fulfill our dreams. I recognized this as a momentous period of growth, change, and opportunity for all who dared to reach out and take up a cause.

Fast forward to today—a time and place where the current status quo provides so much. The disability community now has access to civil rights, education, healthcare, social security, affordable housing, and networks of support organizations and services. And there are always families steadfast in their love and commitment. Yet, these hard-fought rights—the freedom to live the lives of our choosing, and our children’s—are now threatened. We are being called upon to stand tall against indifference and attack from others. We are being tested like never before to defend our lives and our community. Because, as we all know, at any moment, any of us could join this community. I am confident my sisters will “RISE UP” and fight to protect our families.

And so, I say THANK YOU to the women who came before me. Thank you for allowing me to take up the banner of motherhood at my own pace, following my instincts without judgment. I am grateful for the choices I have been given. I am blessed with four children who have taught me more than all my years of schooling. My son Joseph’s disability has been both a challenge and an inspiration for everything I do. I also thank the mothers of today, who energize me with their spirit of unwavering determination. Thanks to the mothers I have met over the years—those who keep me grounded, nurture me, and guide me through dark moments and scary days. I am never alone, for I have found my community—one that protects, represents, and holds me dear forevermore.

Happy Mother’s Day!

 

A Personal Story: Why Developmental Disabilities Awareness Month is Important to Me

By Joseph Meadows, former Board Member for Arc of California and Arc of United States

Developmental Disabilities Awareness Month gives me, and other people with disabilities, the chance to share our stories. I have lived in Sacramento, CA and lived independently in a group home for 15 years. I have previously served for many years on the Board of Directors for The Arc of California and The Arc of United States. In November 2022, one of my roommates Jon passed away. Over the years he became much more than just a roommate. He was my best friend, and I miss him dearly.

Jon taught me something important that I want to share with everyone: “People should be seen for their gifts and talents and not their disabilities.”

People with disabilities have a voice and the same desires for what they want in life as anyone else.

My friend had a gift for gardening that he shared with me, and in return, I showed him how to ride the city bus so he could go out into the community. One of our favorite things to do together was attending the Sacramento River Cats baseball games. In the picture above, I am on the left side and Jon is in the middle. We both loved sports and going out to eat at Buffalo Wild Wings.

I continue to be active in the community and grateful I had the opportunity to share my life with a good friend. Jon continues to inspire me to be an advocate and help raise awareness for the disability community and being fully accepted for who we are — a human being.

Join this month’s campaign and share your story! What do you want people to know about living with a disability?

If you are a friend or family member of a person with a disability, share something about them that you love or makes you proud. Email us with your photo and story at info@thearcca.org

Together, we want to build a future of acceptance, equality and inclusion. It starts by understanding each other better. This is our month to help people understand developmental disabilities! Join Us!