Supports for Californians with Disabilities on Chopping Block as Congress Debates Whether or Not to Cut Medicaid

Image of white house with protestor holding signs that say disability rights are human rights. Text says US Budget Alert. Massive Cuts to Medicaid Proposed in Federal Budget

By Jordan Lindsey, Executive Director, The Arc & UCP California Collaboration

As individuals, families, and advocates have feared, the Republican controlled congress is debating major cuts to health and social services that could dramatically impact the availability of services for Californians with intellectual and developmental disabilities. Speaker Mike Johnson has published a list of possible spending cuts that include $2.3 trillion to Medicaid, with the largest Medicaid cut coming from “Per-Capita Caps”, which means that the federal government would set a cap on the total services and supports any individual could receive throughout their lifetime. For an individual with a lifelong intellectual or developmental disability, this would be catastrophic.

If Congress and President Trump sign a cut to Medicaid into law then California would lose tens of billions of dollars and would likely be forced into cutting programs funded by Medicaid. So, what are those programs? Here is a quick snapshot of services and supports that would be threatened:

  • All regional center services for Californians with intellectual and developmental disabilities and their families (supported living, supported employment, transportation, day programs, respite, early intervention, group homes, and many more).
  • In Home Supportive Services for people with disabilities and seniors (IHSS).
  • Covered health care for people with disabilities, low-income children, pregnant mothers, and other low-income Californians (Medi-Cal).
  • All long-term care services, including nursing facilities, prescription drugs, and home and community-based services.
  • School services and therapies for children on Medi-Cal, including school psychologists, speech and language therapists, personal care aides, nurses, and more.

Californians with disabilities and seniors are especially vulnerable to cuts to Medicaid because they account for just under half of all Medicaid expenditures in California.

Advocates have begun meetings with the nine Republican members of the House of Representatives in California to discuss the importance of Medicaid for people with disabilities, and already Representatives David Valadao and Young Kim have carried this message to Republican leadership. We are looking to the remaining seven members (LaMalfa, Obernolte, Kiley, McClintock, Fong, Calvert, and Issa) to similarly lead efforts in D.C. to protect our community. The Arc and UCP California Collaboration will publish training and advocacy opportunities for all Californians in the coming days.

HOW CAN YOU HELP?

  1. JOIN AN IMPORTANT WEBINAR: On January 29 at 1:00 p.m. (PST) for advocates nationwide to gain essential tools and resources to effectively advocate to save Medicaid in 2025. Click HERE to register.
  2. SIGN UP FOR OUR ACTION ALERTS! It’s important to stay informed and ready to take action. We will notify you when it’s time to testify at a hearing, contact your legislator, join budget briefing, or sign a petition letter.  Click HERE to Sign Up
  3. DONATE TO THE ARC: Help power our advocacy efforts to protect funding for programs and services for Californians with developmental disabilities, their families and the dedicated professionals who provide daily supports. Click HERE to donate.

Thank you for your advocacy. It’s going to take our entire community to join forces and protect our safety net of services.

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