A Mother’s Perspective on Autism: Awareness, Acceptance, and Advocacy

By Felisa Strickland, Secretary, The Arc of California Board of Directors and Parent Educator

Around the world, April is a time to recognize and celebrate the lived experiences of people with autism. For as long as I can remember, especially since my daughter Lily’s diagnosis, there has been ongoing debate about whether it should be “Autism Awareness” or “Autism Acceptance,” represented by the colors blue or red, and a puzzle piece or an infinity symbol.

As the mother of a daughter with autism and other disabilities, I find that I can’t always keep up with the latest conversations, nor do I always have the capacity to engage deeply in them. Not that they aren’t important, I respect everyone’s passion to advocate for what feels right for them and their families. After all, autism is a spectrum. There is room for many perspectives and lived experiences.

In a perfect world, there would be no need for debate. But as we know, this is far from a perfect world. Still, awareness can lead to acceptance, and acceptance can lead to advocacy, and so on. I’ll stay hopeful we can all eventually agree.

I can’t speak as a person with autism, but I can speak as a parent who loves, cares for, and supports a daughter with autism. Being Lily’s mom has meant living with awareness from the very beginning: learning, understanding, and loving in ways that continue to evolve every day.

I became aware of differences early on. I learned how to comfort, adapt, and create solutions. I came to understand that this journey would be different, but not less. And through it all, love has guided us toward acceptance and joy, even in the hardest moments. In many ways, this may not be so different from the experience of other parents. But where it becomes more complex is in the reality that our world was not built to support all these unique needs.

Advocacy then becomes a way of life, one that creates change not only for our own families, but for others as well.

Through awareness, we begin to move toward acceptance. We learn to celebrate differences and advocate for the services, supports, and accommodations needed to build a truly inclusive world.

This month, as we recognize autism around the world, let’s commit to spreading awareness and advancing acceptance by listening to the diverse voices of people with autism, educating ourselves and others, and supporting policies and practices that strengthen inclusive schools, workplaces, communities, and families.

Let us remember that embracing our differences is what makes us stronger, more compassionate, and more connected as human beings. Let’s continue striving for a world where we all belong.

April is Autism Acceptance Month

April has widely been known as “Autism Awareness Month” in the United States as a way to empower autistic individuals and their families. The autism community and leading disability organizations are calling for a shift in language to match the growing need for acceptance within the community. The shift in the use of terminology aims to foster acceptance to ignite change through improved support and opportunities in education, employment, accessible housing, affordable health care and comprehensive long-term services. 

The Autism Society of America, the nation’s oldest leading grassroots autism organization, is proud to celebrate Autism Acceptance Month in April 2021 with its “Celebrate Differences” campaign. Designed to build a better awareness of the signs, symptoms, and realities of autism, #CelebrateDifferences focuses on providing information and resources for communities to be more aware of autism, promote acceptance, and be more inclusive in everyday life.

To learn more about how you can support the language change from awareness to acceptance visit: https://www.autism-society.org/get-involved/national-autism-awareness-month/