The Arc of California would like to thank our team of serious advocates who dedicated one week of their life to be the most effective change agent possible.  In fact while the advocate were in training they came across another group working on a candidates forum and they were able to involve The Arc of CA in their planning activities for the forum on August 7, 2010.  We are now committed to trying to get 500 people with intellectual and developmental disabilities and their families to this upcoming candidatres forum that has commitments from Senator Barabara Boxer and John Chang running for statewide office tentative commitment from candidate Jerry Brown and still negotiating with candidate Meg Whitman.  The forum will also feature other statewide and local superintendants candidates.  To learn more about this upcoming event visit the website at: http://www.coastalalliance.com/calendar/calendar.html.  Watch for the following dedicated advocates they may be asking you to get engaged in some type of community action very soon:

1. Jennifer Griffin, Alpha Resource Center/Partners in Policymaking (2008)
2. Sheryl Logan, The Arc of California, Partners in Policymaking (2009), and San Gabriel Pomona Regional Center
3. Ron Luter, Arc of Alameda County
4. Michelle Feghali, Arc of California/Partners in Policymaking (2009)
5. Ray Creekbaum, Bakersfield Arc
6. Roland Burkert, Bakersfield Arc
7. Jacquie Foss, The Arc of CA, STEP, CA Supported Living Network
8. Greg deGiere, The Arc of California
9. Peter Bowers, The Arc of California & Contra Costa County

Monday July 26, 2010

We'll be attending the celebration of the 20th Anniversary of the Americans with Disabilities Act at the state capitol West Steps and later we'll be attending the graduation of the class of 2010 California Youth Leadership Forum for Students with Disabilities (YLF). The YLF is ground breaking leadership forum for high school juniors and seniors over six-days focused on on employment preparation and leadership development. 

ADA 2010 Sacramento Resource Fair Exhibitors

 July 26, 2010, 11:15am to 2:30pm

Sacramento Convention Center

1400 J Street, Sacramento

The ADA Celebration will include information booths and speakers such as Jennifer Kumiyama, Miss Wheelchair California, National Anthem, MC Welcome/Kickoff: Tina Macuha, Good Day Sacramento, Tina Macuha, Anthony "Tony" Sauer, Director of the Department of Rehabilitation, David Bain, Chair, Disabilities Advisory Commission (City of Sacramento), Ana Acton, Sheri Farinha, Brenda Premo, Eric Ybarra, Billy Ray Hall, Peggy Collins, Representing Senator Ellen Corbett, and Assembly Member Mariko Yamada.

The YLF Luncheon

July 26, 2010, 11:30 am

Sacramento Convention Center, 2nd Floor.

Located at 1400 J Street. Please arrive by 11:30pm.

Speakers: Josh Sundquist, Dani Anderson, Dr. Catherine Campisi, and Sara Moussavian.

Tuesday July 27, 2010

The Committee on the Future of The Arc will be meeting by conference call chaired by Nancy Webster from The Arc of United States.  The committee will be reviewing the Core Values of The Arc to ensure the definitions are still in alignment with the mission of the movement.

We’ll be meeting with the new management of Essential Learning to discuss their services in providing quality training for Direct Support Professionals and explore potential ways to partner in our shared objectives of creating a quality workforce for people with intellectual and developmental disabilities.

We’ll be meeting with officials from the Department of Developmental Services receiving technical assistance regarding Wes Chesbro’s AB 2702, the bill that assures that changes to a person’s IPP or IFSP will not be made without their participation.

Wednesday July 28, 2010

We’ll be participating in the board of directors meeting for the National Conference of Executives of The Arc. 

Thursday, July 29, 2010

“CHALLENGING BEHAVIORS IN CHALLENGING TIMES: How we can best serve children through regional multi-agency collaboration.  This regional summit will focus on the provision of services to children and young adults with significant behavioral challenges in a time when we are all struggling with dwindling resources. Join us for a day of presentations from innovative collaborative service models, networking and county/regional break-out groups to discuss future collaboration. Registration is FREE and made possible by a grant through the Mental Health Services Act administered through the Department of Developmental Services.  Organizers are targeting those responsible for ensuring children and their families receive services from Mental Health Departments, Regional Centers, SELPAS, Social Services: Children’s Protective Services (CPS), and First Five organizations within San Bernardino, Riverside, Orange, San Diego, Imperial Counties.  The training will be held from 9:00am – 3:00pm at the Ontario Airport Hilton, 700 North Haven Avenue, Ontario, CA. While the event is free the space is limited so register soon at http://arcanet.org/conference.php and if you’re staying overnight call (909) 980-0400 for and ask for the “ARCA” guest room rate. Questions?  Contact Anh Nguyen at (916) 446-7961 or nguyena@arcanet.org

Thursday July 29^th 2010

We’ll be participating in Pre-Conference training for the National Conference of Executives of The Arc.  Beth Jandernoa will be presenting on “Leadership for Profound Change and Innovation: The U-Process.”  This one day experiential workshop will introduce you to a pioneering approach to change called the U-Process.  This innovative social technology is based on findings from interviews with over 150 thought leaders in the areas of creativity, high performance, and leadership and from years of experience in working in generative leadership development and change processes. Participants will learn and practice the core principles of the U-Process, 4 levels of listening and speaking, dialogic interviews, an approach for accessing inner sources of creativity and commitment, and a process for prototyping experiments in creating the new.

Friday July 30, 2010

Allan Bergman, will be presenting on "Suit the Actions to the Words."  This session intends for participants to learn together how the current environment of financial constraints and challenges provides opportunity to review and hone our values, compare them with what we do and then seize the moment to advance our mission strategically and operationally.  In the words of Jim Collins, author of Good to Great, Bergman wants to reminds us that:  "Greatness is not a function of circumstance.  Greatness, it turns out, is largely a matter of conscious choice, and discipline."  On Friday California will be represented by Alan Fox, COO, The Arc of San Francisco who will be presenting on "Real Health Care Reform for People With Disabilities" and later that day on "Client Micro-enterprises"  and James Stream, Executive Director, The Arc of Riverside County, will be presenting on "The Value of One Project on Dignity and Respect for People With Intellectual Disabilities."  There are several other dynamic session representing a very well rounded conference from professional all over the country.

Saturday July 341, 2010

Paul Marchand, Staff Director, The Arc and UCP Disability Policy Collaboration, will present "Lessons From a Lifer."  Since The Arc's founding in 1950, this leading national disability organization has played huge roles in the massive evolution and growth of government programs to serve its constituents.  Seen through the lens of the longtime director of The Arc's national public policy office, a mini revolution, created and fostered by parents of individuals with intellectual disabilities, takes shape and alters our society.  For newbies or seasoned disability veterans, this oral history will be enlightening, informative and seeded with humor. Leigh Ann Kingsbury, M.P.A., Gerontologist, will present on "Using Person-centered Practices to Support Health Care Decisions, Advance Directives and End-of-life Care" and one of our Partners graduates, Michelle Dumay, Principal, Tayib Media, will present on "Text Messaging for Fundraising, Advocacy & Activism."  And again much more....

Sunday August 1^st, 2010

The National Conference of Executives of The Arc and The Arc of the United States Board of directors will have a joint session to discuss “Rebranding The Arc, with CoreBrand a national branding firm.  Later that day the board will continue meeting through Monday.  http://www.thearc.org/NetCommunity/Page.aspx?pid=2519

Action Alerts

The Arc of California (Greg deGiere, Public Policy Director, The Arc of California)

We are working closely with Assemblymember Wes Chesbro as the sponsors for his bill, AB2702, a bill that clarifies that people with intellectual and other developmental disabilities must be included in decisions that change their IPP or IFSP.  The Assemblymember is the author of AB 2702 and he would like to tell the stories of how this happened to people in our community and why his bill is needed to address the related issues.  In developing the bill we heard many stories from folks but now the bill is being strongly challenged and we need more current examples to show why this concept is so important to us all.  Click here and tell the policymakers what’s happening: http://www.surveymonkey.com/s/AB2702

The Arc of the United States

President Obama Speaks at the 20th Anniversary of the Americans with Disabilities Act Event

Today’s ADA celebration, which begins at 5:30 Eastern time, will be streamed live at www.whitehouse.gov/live.  Please log in and share in the celebration.  The live stream, barring any technical difficulties, will have available captioning either as picture in picture or another technical setup.

20^TH ANNIVERSARY OF THE AMERICANS WITH DISABILITIES ACT (ADA)

Please join Secretary of Labor Hilda L. Solis and Assistant Secretary for Disability Employment Policy Kathleen Martinez at the Department of Labor’s celebration of the 20^th anniversary of the signing of the Americans with Disabilities Act (ADA).  The event is scheduled for July 30, 2010 from 2:00 p.m. until 3:00 p.m. in the Great Hall of the Department’s Frances Perkins Building in Washington, D.C. 

This anniversary provides a unique opportunity for the Department of Labor to reaffirm its commitment to the ADA’s principles of equality, access, and inclusion; and to commit itself to ensuring that the goals of a diverse workforce and good jobs for everyone includes workers with disabilities.

Our keynote speaker for the event is former United States Congressman Tony Coelho, an author and sponsor of the ADA and Chair of the Epilepsy Foundation of America, who will share his thoughts on the impact of the ADA.   The event will conclude with remarks from Christine Griffin, Deputy Director of the Office of Personnel Management (OPM).

The highlight of the event is the induction of Justin Dart, Jr. and Helen Keller into the Department’s Labor Hall of Fame.  The Labor Hall of Fame honors, posthumously, those Americans whose distinctive contributions to the field of labor have enhanced the quality of life of America’s workers.  Notable members of the Labor Hall of Fame include Cesar Chavez, Mother Jones, and Frances Perkins, among others.

Justin Dart, Jr. is widely regarded as the father of “the Americans with Disabilities Act.”  Thanks to his tireless efforts and leadership, the landmark legislation passed and now serves as the foundation for equal opportunities for people with disabilities.  Mr. Dart was both a successful businessman and a lifetime advocate for the rights of people with disabilities, women, people of color, and the gay and lesbian community.  In 1989, he was appointed Chair of the President’s Committee on the Employment of People with Disabilities (a precursor to DOL’s Office of Disability Employment Policy) where he advocated for the full civil rights for people with disabilities, including the right to employment based on abilities.  Mr. Dart received five presidential appointments and numerous honors, including the Hubert Humphrey Award of the Leadership Conference on Civil Rights and the nation’s highest civilian award, the Presidential Medal of Freedom.

Helen Keller’s victory over deafness and blindness taught the world that everyone has something positive to contribute when they are given an opportunity.  As a major fundraiser for the American Foundation for the Blind, she proved instrumental in assisting people with visual disabilities in the areas of technology, education, independent living, literacy, and employment.  Ms. Keller campaigned to make Braille the standard system for reading and writing for people with vision loss.  In addition, she successfully pushed the Federal Government to include blind people in the definition of “disabled” under the Social Security Act so that they could receive financial help.  By providing her unique example of courage and hope, Ms. Keller changed the world and the lives of millions of people with visual impairments. 

We would be honored to have you attend this special celebration with us. 

LOGISTICS:

What:  DOL Commemoration of the ADA and Induction of Justin Dart, Jr. and Helen Keller into the U.S. Department of Labor’s Labor Hall of Fame

When:  July 30, 2010, 2:00 – 3:00 p.m.

Where:  Department of Labor (DOL) Great Hall

   200 Constitution Avenue, N.W.  (3^rd & C St. entrance)

   Washington, D.C.  20210-0001

Project Status Report

Partners in Policymaking

We are more than halfway to graduation of the 2010 class of Partners in Policymaking.  In the past four years, Partners in Policymaking California has provided advocacy training to more than 130 adults throughout the state.  We have brought together adults with developmental disabilities and parents of children with disabilities in an intense training environment involving expert speakers, challenging homework assignments and numerous opportunities to practice their newly learned advocacy skills.  To learn more about this internationally recognized training program you can visit partnersinpolicymaking.com or our California website at pipcalifornia.org.

The 2010 class began looking at how public policy is created by local, state and national governments while also training ways to advocate for change at those levels.  Last week we explored grassroots advocacy while also covering local and national policymaking.  On Friday, Mary Gonzales, California Director of the Gamaliel Foundation, an international organizing institute presented strategies and techniques for community organizing and grassroots advocacy.  Ms. Gonzales began organizing professionally in 1980.  Prior to that she was a highly recognized leader in a community organization in Chicago that won many significant campaigns for the immigrant residents of the community.   Mary regularly provides organizing and advocacy training across the United States as well as internationally.

On Saturday morning Annie Acosta and Julie Ward from the Disability Policy Collaborative of The Arc and UCP gave an overview of all the national legislation impacting our community.  Tony Anderson, Executive Director of the Arc of California covered how policy and legislation are handled by the federal government and shared tips and strategies for getting involved in advocacy at the national level, even while living 2700 miles from the capitol.  Joe Meadours, Executive Director of the self-advocacy organization People First of California, share his personal story of visiting the capitol and speaking up for people with disabilities.  Ontario City Council Member Debra Dorst-Porada was scheduled to join us for a discussion of local government, but instead sent a representative for the city because of a conflict in her schedule.  We looked at the authority of both city and county governments and how to get involved in local policymaking.

In August we will address policymaking at the State level and practice giving public testimony at a mock hearing.  In September the participants will learn how business meetings are conducted under Roberts Rules of Order and how to get involved by serving on boards and commissions.  Graduation for the 2010 class of Partners in Policymaking will take place at the Hilton Ontario Airport on September 25^th.

Workforce Development

New Bill Speaks Up for Direct Support Professionals: The Direct Care Workforce Empowerment Act.  On July 28, Congresswoman Linda T. Sanchez from California will host a press conference in Washington, DC, to announce the introduction of the Direct Care Workforce Empowerment Act, a bill that will help create a more stable, valued direct care workforce and improve the the quality of care  and quality of life for millions of Americans. This bill is intended to assist all direct care workers - home care aides, personal care attendants, personal assistants, nursing assistants, direct support professionals and others - who provide direct support to people with all types of disabilities, as well as people who are aging and in need of supports.

NADSP applauds Congresswoman Sanchez for proposing a legislative solution to some of the most pressing issues facing the direct support workforce. NADSP joins the Direct Care Alliance in supporting this important bill. The Direct Care Workforce Empowerment Act extends wage and overtime protections to home care workers; improves data collection and workforce monitoring; and provides grants to states to improve direct care workforce recruitment and retention practices.

Your voice and those of our colleagues who work in other service systems have been heard! Congresswoman Sanchez has listened and learned from your stories, and was inspired to take action. Shouldn't your Representative do the same? Please contact your Representative and ask that they become original co-sponsors of this exciting new bill today!  To find out how to contact your Representative and ask them to co-sponsor this new bill, you can click here.

To read NADSP's one-page summary of the key pieces of this proposed legislation, click here. Feel free to share this with your legislators, friends, and colleagues. We will keep you informed on the progress of this bill in future NADSP eFlash newsletters.

Prevention Activities

Damage From Binge-Drinking in Pregnancy Worsens With Age - Children of women 30 or older suffered greater harm from prenatal exposure to alcohol, researchers find

US News and World Report July 21, 2010

WEDNESDAY, July 21 (HealthDay News) -- Older women who binge-drink when pregnant are at higher risk for having children with permanent alcohol-related brain damage, new research finds.  Children of pregnant women 30 or older who binge-drink are more likely to suffer greater damage from Fetal Alcohol Spectrum Disorders (FASD), a group of birth defects that includes irreversible physical and mental disorders as well as permanent mental retardation, the study says. The findings are reported online in advance of print publication in the October issue of Alcoholism: Clinical & Experimental Research.  "Our finding that children born to older drinking mothers have more alcohol-related attention deficits than children born to younger drinking women is consistent with prior studies," Lisa M. Chiodo, an assistant professor in the college of nursing at Wayne State University, said in a journal news release.

"Although not conclusive, this finding may be due to older moms drinking for longer periods, greater alcohol tolerance, and having more alcohol-related health problems -- all leading to higher levels of alcohol in their fetuses," Chiodo said. "It has also been suggested that changes in body size, metabolism or composition, or number of births, which are all related to maternal age, may be factors increasing the impact of prenatal alcohol exposure." The study involved 462 children -- divided equally between boys and girls -- who were born to inner-city women recruited while they were pregnant. The researchers examined binge drinking, smoking, cocaine, marijuana and opiate use during pregnancy. Tracking the offspring of the women up to the age of 7, the authors conducted performance tests to assess attention skills at the study's conclusion.

The team found that those children born to mothers 30 years or older who engaged in binge drinking while pregnant had more attention deficit issues that those born to the younger mothers. Those born to the older moms were found to make more errors on the completed tests and tended to respond to questions more cautiously and slowly. Researchers said the findings had implications for prevention efforts and training programs for children damaged by exposure to alcohol in the womb. The National Women's Health Information Center warns that there is no safe level of alcohol consumption during pregnancy, and that women who are pregnant should not drink at all.  http://health.usnews.com/health-news/family-health/brain-and-behavior/articles/2010/07/21/damage-from--binge-drinking-in-pregnancy--worsens-with-age.html

Upcoming Events

Monday August 2, 2010 – Thursday August 5, 2010

2010 OSEP Leadership Mega Conference. Click here for a brief orientation video to walk you through the upcoming conference. The Office of Special Education Programs (OSEP) will host the 2010 OSEP Leadership Mega Conference on August 2-5, 2010, at the Hyatt Regency Crystal City. The theme for this year's conference is Collaboration to Achieve Success from Cradle to Career. This new conference is a union of the three previously OSEP-sponsored conferences – the National Parent Center Conference, the National Early Childhood Conference, and the OSEP Leadership Conference. Click on the following links to view each strand's final agenda: Measuring Child and Family Outcomes - ECO Pre-Conference Meeting (Word document, PDF)

Strand 1 - Parents (Word document, PDF)

Strand 2 - Early Childhood (Word document, PDF)

Strand 3 - Collaborative Leadership (Word document, PDF)

Strand 4 - State Directors (Word document, PDF)

October 5-8, 2010

18th International Congress on Palliative Care, Palais des Congrès, Montréal, Canada, EARLY BIRD REGISTRATION DEADLINE: August 1, 2010.  Presented by the Palliative Care Division of the Departments of Medicine and Oncology of McGill University since 1976, this biennial Congress has earned its well-deserved reputation of being one of the world’s preeminent gatherings of palliative care professionals and others with an interest in the field.  WHAT MAKES THE INTERNATIONAL CONGRESS ON PALLIATIVE CARE SO SPECIAL?  A unique opportunity to meet, share experiences and exchange ideas with colleagues from 50 countries, representing all disciplines involved in palliative care.  Practical, in-depth workshops and seminars on a broad range of topics covering all aspects of end-of-life care, from the most current scientific developments in pain and symptom control, to the large existential questions, to hands-on experiential sessions addressing practical issues faced every day. Renowned speakers who expand your knowledge, deepen your understanding, and inspire you to renew your commitment to palliative care. All sessions structured to allow ample time for dialogue, questions and thoughtful interaction with speakers and fellow participants. Reflections – a brief interlude of images and music at the start of each Plenary – providing a unique and moving experience that leaves a lasting impression. Over 200 workshops, proffered papers, research forums and special seminars, and 350 posters.

February 14 - 16, 2011

SAVE THE DATE: Disability Policy Seminar

GRAND HYATT WASHINGTON

1000 H Street, NW, Washington, D.C.

Recently Released Reports, Studies, etc.

The “Disaster Dozen” Top Twelve Myths of Disaster Preparedness

by Paul Purcell

Hurricane Katrina and other recent disasters have given us yet another disaster preparedness wake-up call.  Do we pay attention now or hit the snooze button again? 

Pushing past the debates over government reaction, we come to the bottom line conclusion that, “Yes, more could have been done.”  In other articles we’ll get into some of those debates, but for now, let’s look at the most important part of a comprehensive emergency readiness plan, and that is the preparedness levels of individuals and families.

We find that the biggest obstacles to comprehensive family emergency readiness education are the misconceptions surrounding the true nature of preparedness.  So, to set the stage for better education, and ultimately better public safety, let’s take a look at some of these myths.

1.  “If something happens all I have to do is call 911.”

Help can only go so far, or be there so quickly.  Security, like charity, begins at home and the responsibility for your family’s safety rests on your shoulders.  This isn’t to say that you shouldn’t call for help when it’s truly needed, it’s to remind you that you may be on your own for while, especially if the situation is an expansive or severe one. 

2.  “All I need is a 72-hour kit with a flashlight, first aid kit, some food and water, and a radio.” 

We’re not sure where the “72 hour” figure came from, but it’s an extremely minimal amount of time and not very realistic.  A more practical goal is to be self-sufficient for a minimum of 2 weeks.  Why 2 weeks? As bad as Katrina was, there are numerous disaster and terrorism scenarios that could see substantially more damage, and a disruption of local services for three weeks or more.  Also, many biological scenarios may see a 2-week quarantine.  Regarding supplies and equipment, avoid the “one-size-fits-all simpleton lists” and customize your disaster kit to fit your family’s unique threats, needs, and assets.  (See www.1800PREPARE.com.)

3.  “My insurance policy will take care of everything.”

SWAT teams of insurance agents aren’t going to instantly rebuild your life like on TV.  Insurance companies will be far more concerned about their own bottom line than yours.  In fact, many insurance companies are rewriting policies to redefine some rather common terrorism or disaster related incidents as being excluded and not coverable.  Check your policies closely!

4.  “Good preparedness is too expensive and too complicated.”

Nothing could be further from the truth.  The problem is, we haven’t made preparedness a part of our overall education.  We get more preparedness info on an airline flight than we get as citizens.  Most of us aren’t taught that there are literally thousands of subtle, simple, and economical things we can do to drastically improve our emergency readiness.  The notion that it might be expensive or complicated has come from companies that aggressively market high-priced unnecessary gear. 

5.  “We can only form a Neighborhood Watch group through FEMA, the Red Cross, or local Law Enforcement.”

Neighbor helping neighbor is one of our highest civic duties.  No one regulates this and you don’t have to get anyone’s permission to coordinate your safety with others.  Working with these groups is rather advantageous, but not required.

6.  “In a ‘Weapons of Mass Destruction’ terrorist attack, we’re all dead anyway.” 

“WMDs” might kill larger numbers of people, but that doesn’t mean widespread destruction is a guaranteed thing.  In fact, for widespread destruction, a top-grade WMD must be expertly and precisely applied under ideal conditions.  This does not mean that WMDs are to be ignored or that they’re nothing to fear, it’s just that “Mass Destruction” does NOT mean “Total Destruction” at all. 

7.  “Nothing like that could ever happen here.”

Though some areas are more prone to certain types of disasters, say earthquakes in California, or terror attacks in New York, no area on earth is completely immune.  Too, with as much as people travel, you might travel somewhere and wind up in a disaster you never thought about. 

8.  “All I have to worry about is my own family.”

Technically yes, but the more you’re able to care for your own family, the more you can and should help others.

9.  “If preparedness were really important it would be taught in school.”

Preparedness really is that important, but schools have only  so much time and budget to teach the things they already do.  This is one of the many things we’re trying to change, but for now, you’re going to have to not only realize the importance of thorough emergency readiness, but to teach your family yourself.

10.  “I can get free preparedness information on the Internet.”

Many free sources contain really good information.  However, it takes time and experience to filter the trash from the treasure.  Worse, some of these free sites have “information” that could actually cause more problems than they cure.  This is why we spent years in gathering the over 400 additional books and training manuals on the CDs in “Disaster Prep 101.” 

11.  “Full preparedness means I have to get a lot of guns and be a ‘Survivalist.”

While personal security and family safety are valid concerns, the vast majority of people around you will not be a threat.  In fact, though looters gained a lot of media attention after Katrina, there were far more numerous stories of heroism.  We suggest you balance your personal security needs with your desire to help those around you and strive to reach the best of both worlds.

12.  “If something really bad happens, NO one will help.”

There’s no such thing as “no one helping.”  However, the best thing people can do to is to prepare their families so they need as little outside help as possible.  There’s always someone needier than you and the more prepared you are, the more you free up assistance resources so they can help those less fortunate. 

About the author:  Paul Purcell is an Atlanta-based security analyst and preparedness consultant with over twenty years risk management and preparedness experience.  He’s also the author of Disaster Prep 101 found at www.disasterprep101.com, and he’s a partner / advisor to 1-800-PREPARE found at www.1800PREPARE.com.   Copyright 2005 - 2007, Paul Purcell.   

(Permission granted to reprint this article and share it with others provided all portions remain intact.)  Download this article as a PDF file:  Click Here for Free Download (or "right click" and "save as...").

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Career Ladder

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals and People with Disabilities that there is a real “career ladder” in their chosen profession.

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