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MONDAY MORNING MEMO
News, Information, & Opportunities for California's Intellectual & Developmental Disability Community
September 11, 2017


IN THIS MEMO:
  • California A Target for New Health Care Proposal
  • Fight For New Housing Down To The Wire...Again.
  • We Are Citizens, Not Politicians!
  • FASD Intervention Research Yields Promising Results
  •  
  • Focus On: The Arc Riverside
  • Upcoming Events, News, Articles, and Research
  • Jobs, Funding Opportunities, & More


NEW ATTEMPT TO TAKE AWAY FUNDING FOR CALIFORNIA'S DISABILITY PROGRAMS
Jordan Lindsey
Executive Director, 
The Arc California

Congress is back in session.

The good news is that there are bipartisan hearings scheduled, with testimony from a group of bipartisan Governors who released a series of recommendations for improving the Affordable Care Act (ACA), including funding the cost-sharing reductions, reinsurance, fixing the family glitch, aggressive outreach and enrollment, and more.

The bad news is that attempts are still being made to drastically reduce Medicaid funding - which funds almost all disability services and programs - and even worse, California is a specific target of a new proposal.

Last week, the Trump Administration said that they would be scaling back marketing (by 90%!) and application assistance funding for the upcoming open enrollment period. Thankfully, Covered California raises its own marketing budget, and along with pending pieces of legislation in California, we should have the will & wherewithal to withstand these attempts to underfund the ACA here in our state. 

However, California's ability to withstand these attacks depends on keeping the ACA's framework and financing intact. Don't forget that the House ACA repeal bill, the American Health Care Act, is still pending on the Senate floor, and there's interest from Republican Governors, working with Senators Cassidy and Graham, to try again with a proposal that explicitly targets California for additional cuts to help get support from other states.  

Speaking about this proposal, former Pennsylvania Senator Rick Santorum, who is spearheading one of these efforts, is quoted saying:

"...if California simply wants to expand Medicaid with this money, good luck. They're going to have to cut their program dramatically because they don't have the money with what they're funding now." 

and

"There will be some states like California and Massachusetts that will take a substantial reduction from what they received the previous year..." 

Senator McCain just announced that he would support such a bill-giving extra life to yet another ACA repeal attempt.

On top of these threats, we face a huge fight on the federal budget. The House is expected to soon have a floor vote on a budget resolution with $1.5 trillion dollars in Medicaid cuts (twice as much as what was in any of the ACA repeal bills) and another over $400 billion in Medicare cuts.


Learn more about the federal threats to health care and Medicaid funded disability services:
  • Read Federal Fact sheets by Health Access:
  • Find out how you're Congressional District will be affected in  these fact sheets from the California Budget & Policy Center
Call or Tweet your Member of Congress and tell them not to vote for any budget or legislation that cuts Medicaid.  Also be on the lookout for action alerts from The Arc!


Fight For New Housing
Is Down To The Wire Again This Year



With one week left in the 2017 legislative year, the fight for affordable, accessible housing has emerged again as probably the biggest remaining issue.

Adults with intellectual and other developmental disabilities face what may be the state's worst housing situation; many live with poverty-level incomes, and many also need housing that is accessible. It's little wonder that, according to homelessness service providers, more than half of the people they serve have disabilities.

Three major bills have emerged this year as a partial solution to the state's housing crisis. We actively support all three, in addition to several other bills that may still have some chance of passing this year,

As of now, two of the three look like they have good chances of passing:

 SB 3 by Senator Jim Beall, a $4 billion housing bond act for the November 2018 ballot; and

 SB 35 by Senator Scott Weiner, to streamline approvals for multi-family housing developments that meet certain criteria and are in areas that haven't produced enough affordable housing to meet their needs. The ida of to make it harder for "not in my backyard" neighbors to block affordable housing.


The big bill that's in doubt is SB 2 by Senator Toni Atkins to create a permanent funding source for affordable housing development housing development. It would charge fees from $75 to $225 for real estate transactions, but not including home sales. As a bill that imposes a tax, the bill requires two-third majority votes in both the Senate and Assembly, a threshold that, as of this writing, it did not yet meet.

 
Greg deGiere
Director of Policy & Advocacy, The Arc/UCP California Collaboration
Greg




ADVOCACY & COMMUNITY ORGANIZING

WE ARE CITIZENS!

Tim Hornbecker, Director of Advocacy & Organizing

"People Acted as Citizens and Not as Politicians" -Howard Zinn

I wanted to share this article from an American historian, playwright, and social activist who was a political science professor at Boston University, Howard Zinn. This short article was written the year before he died in 2010. But it was a real reminder to me that as advocates and organizers, we must be careful not to compromise, the difference between citizens and politicians!  We had a powerful rally and march in August, we must keep advocating for equitable wages and the necessary funding. We must address issues like DACA and Walls Being Built not by East Berlin but by the United States! 

Article from The Progressive, May 2009:

We are citizens. We must not put ourselves in the position of looking at the world from (politicians') eyes and say, "Well, we have to compromise, we have to do this for political reasons." No, we have to speak our minds.

This is the position that the abolitionists were in before the Civil War, and people said, "Well, you have to look at it from Lincoln's point of view." Lincoln didn't believe that his first priority was abolishing slavery. But the anti-slavery movement did, and the abolitionists said, "We're not going to put ourselves in Lincoln's position. We are going to express our own position, and we are going to express it so powerfully that Lincoln will have to listen to us."

And the anti-slavery movement grew large enough and powerful enough that Lincoln had to listen. That's how we got the Emancipation Proclamation and the Thirteenth and Fourteenth and Fifteenth Amendments. 

That's been the story of this country. Where progress has been made, wherever any kind of injustice has been overturned, it's been because people acted as citizens, and not as politicians. They didn't just moan. They worked, they acted, they organized, they rioted if necessary to bring their situation to the attention of people in power. And that's what we have to do today. -Howard Zinn


Tim Hornbecker, Director of Advocacy and Community Organizing, The Arc California tim@thearcca.org
 



HEALTH & WELLNESS
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Teresa Anderson,
Prevention Coordinator

FASD Intervention Research Yields Promising Results

by Teresa Anderson, MPH

On September 9th, International Fetal Alcohol Spectrum Disorders Day, people across the world ring bells at 9:09 a.m. in solidarity and support of those living with FASDs and their families.  The day of the bell ringing serves as recognition of the need to increase awareness about all aspects of FASDs including but not limited to: prevention, treatment, interventions, research, education, family needs and services. FASDs represent a wide range of conditions associated with prenatal exposure to alcohol. The first FASD Day was celebrated on 9/9/99.  This day was chosen so that on the ninth day of the ninth month of the year, the world will remember that during the nine months of pregnancy a woman should abstain from alcohol.

 It is well documented throughout the literature that people with FASDs are at greater risk for mental health issues and secondary conditions that result in behavioral, social and academic challenges. Evidence shows that although the risk for mental health issues remains high across the life span the onset of most secondary conditions occurs during adolescence and adulthood. Effective early childhood interventions have proven to be critical to preventing or mitigating negative outcomes of the secondary conditions and mental health issues. 

According to a recent study published in the journal Alcoholism Clinical and Experimental Research there is a limited body of evidence based research, though growing, related to interventions for people living with FASDs and their families. In addition, pursuing research on interventions it is critical for researches to identify effective approaches to prevent the onset or mitigate the severity of mental health issues and secondary conditions. Findings from a recent pilot project indicate promising results from a multicomponent intervention designed to prevent secondary conditions in children with FASD and improve family adaptation.  The Families on Track Integrated Preventive Intervention pilot project targeted key risk and protective factors for children with FASDs and prenatal alcohol exposures (PAE).  To read the full article visit:  http://onlinelibrary.wiley.com/doi/10.1111/acer.13408/full

To learn more about FASD resources visit the FASD Network of Southern California:
The next meeting the FASD Network of S. CA will be held on September 16, 2017 and will focus on back to school issues. For more information on the meetings visit:  https://fasdsoutherncalifornia.org/events/


The Arc of CA would like to thank everyone that participated in a 9/9 activity to raise awareness about the dangers of drinking alcohol during pregnancy.  





FOCUS ON: 

The Arc Riverside


I had the pleasure of visiting The Arc Riverside and learning about the incredible work they're doing in the community for people with intellectual and developmental disabilities.  Their strong Board of Directors, passionate staff, and interim Executive Director, Fred Robinson, are all aligned with their mission and dedicated to moving the organization into the future.  

- Jordan Lindsey

Meeting with Ron Domme, President of the Board and Fred Robinson, Interim Executive Director, in front of the National Wall of Respect, a project spearheaded by Jim Stream, who passed away earlier this year.

SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
SIGN UP FOR OUR CALIFORNIA ACTION ALERTS

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UPCOMING
 
 
September 12, 8:30PM EDT
"Already Doing It: Sexual Health in People with Intellectual Disabilities" 
The American Academy of Developmental Medicine & Dentistry is hosting a Virtual Meeting. 

October 5-6, 2017
31st Annual Supported Life Conference
"Designing Dreams: Blueprint for a Meaningful Life"
Crowne Plaza Sacramento Northeast

November 2-4, 2017

March 11-13, 2018
The Arc & UCP California Public Policy Conference, Sacramento, CA
 


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FUNDING OPPORTUNITIES



 

Services for Individuals with Developmental Disabilities
The purpose of this project is to increase community integration and independence of individuals with developmental disabilities and to improve the quality of home and community-based services (HCBS) by developing and testing one or more model approaches of a coordinated and comprehensive system that includes two interrelated core components for enhancing and assuring the independence, integration, safety, health, and well-being of individuals living in the community: (1) Community Monitoring and (2) Community Capacity Building. 
HHS 

The Following Grants Can Be Found at https://www.acl.gov/grants

HHS-2017-ACL-AOD-DDUC-0220
University Centers of Excellence in Developmental Disabilities Diversity Fellowships
HHS-ACL
Posted
05/05/2017
07/11/2017
PAR-16-215
Preclinical Research on Model Organisms to Predict Treatment Outcomes for Disorders Associated with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
09/07/2019
PAR-16-216
Outcome Measures for Use in Treatment Trials of Individuals with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
05/07/2019
HHS-2017-ACL-AOD-DNIQ-0221
Living Well-Model Approaches for Enhancing the Quality, Effectiveness and Monitoring of Home and Community Based Services for Individuals with Developmental Disabilities
HHS-ACL
Posted
05/25/2017
07/24/2017
ED-GRANTS-051917-002
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: Model Demonstration Projects To Improve Algebraic Reasoning for Students With Disabilities in Middle and High School CFDA NUmber 84.326M
ED
Posted
05/19/2017
07/03/2017
ED-GRANTS-052217-002
OSERS: OSEP: National Center for the Development and Dissemination of Digital Open Educational Tools and Resources Supported by Evidence to Enhance Personnel Preparation and Professional Development for Educators of Students with Disabilities CFDA 84.325E
ED
Posted
05/22/2017
07/06/2017






HHS-2017-ACL-CIP-DNTC-0233
Strengthening Coordinated Transportation Systems for People with Disabilities and Older Adults
HHS-ACL
Posted
05/26/2017
07/31/2017
ED-GRANTS-041917-001
OSERS: OSEP: Personnel Development to Improve Services and Results for Children with Disabilities: Early Childhood Personnel Center CFDA Number 84.325B
ED
Posted
04/19/2017
06/05/2017
HHS-2017-ACL-AOD-DDTI-0218
Minority Serving Institutions Partnership Planning Grants
HHS-ACL
Posted
05/05/2017
07/06/2017
HHS-2017-ACL-AOD-HAVA-0231
Help America Vote Act (HAVA)
HHS-ACL
Posted
05/18/2017
07/12/2017
PD-08-1698
Developmental Sciences
NSF
Posted
03/23/2009
07/17/2017
PAR-15-149
Enhancing Developmental Biology Research at Academic Research Enhancement Award Eligible Institutions (R15)
HHS-NIH11
Posted
03/23/2015
09/11/2017
PAR-15-196
Developmental AIDS Research Center on Mental Health and HIV/AIDs (P30)
HHS-NIH11
Posted
05/01/2015
09/14/2017
PAR-16-396
NICHD Laboratory of Developmental Biology (R24)
HHS-NIH11
Posted
08/11/2016
05/30/2019
PAR-17-238
Developmental Centers for AIDS Research (P30)
HHS-NIH11
Posted
03/30/2017
08/17/2019
ED-GRANTS-052417-002
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Educational Materials in Accessible Formats for Children and Students with Visual Impairments and Print Disabilities CFDA Number 84.327D
ED
Posted
05/24/2017
07/10/2017
ED-GRANTS-052217-003
OSERS: OSEP: Personnel Development to Improve Services and Results for children with Disabilities: National Center for Improving Teacher and Leader Performance to Better Serve Children with Disabilities CFDA Number 84.325A
ED
Posted
05/22/2017
07/06/2017
HHS-2017-ACL-AOD-DDTI-0219
Diversity and Inclusion Training Action Plan Implementation Grant
HHS-ACL
Posted
05/09/2017
07/10/2017
ED-GRANTS-042117-001
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Stepping-up Technology Implementation CFDA Number 84.327S
ED
Posted
04/21/2017
06/05/2017
ED-GRANTS-052417-003
OSERS: OSEP: Research and Development Center on Developing Software to Adapt and Customize Instruction in Digital Learning Environments to Improve Results for Children with Disabilities CFDA Number 84.327A
ED
Posted
05/24/2017
07/10/2017
PD-17-5342
Disability and Rehabilitation Engineering
NSF
Posted
02/22/2017
10/20/2017
ED-GRANTS-050217-001
OSERS-OSEP: Technical Assistance and Dissemination to Improve Services and Results for Children with Disabilities: National Technical Assistance Center for Inclusive Practices and Policies CFDA Number 84.326Y
ED
Posted
05/02/2017
06/16/2017
HHS-2017-ACL-NIDILRR-REGE-0208
Rehabilitation Engineering Research Centers (RERCs) Program: RERC on Technologies to Promote Exercise and Health Among People With Disabilities
HHS-ACL
Posted
05/31/2017
07/31/2017
ED-GRANTS-051917-001
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: National Center To Enhance Educational Systems To Promote the Use of Practices Supported by Evidence CFDA Number 84.326K
ED
Posted
05/19/2017

 


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
 
Would you like to advocate for the employment, independence and equality for people with disabilities? Are you interested in joining a council that ensures consumers and other stakeholders have a voice in California's vocational rehabilitation program? If so, then a position on the State Rehabilitation Council (SRC) may be for you! The SRC is recruiting for three perspective members representing:
  • The business, industry and labor community,
  • Disability advocacy groups, and,
    A current or former Department of Rehabilitation (DOR) consumer.
 
Alzheimer's Association Northern California and Northern Nevada, Legislative Assistant:
The Alzheimer's Association has a great opportunity for a Part-time Legislative Assistant to join our team in Sacramento, California. Working as a member of the dynamic State Public Policy & Advocacy Team, you will join a statewide network of professionals dedicated to our mission: to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through promotion of brain health. In this role, you will be responsible for coordination of the two-person State Policy Office, providing executive-level administrative support to the State Policy Director/registered lobbyist and remote support to five California chapters and volunteer advocates. The Legislative Assistant will assist in core legislative support functions such as scheduling legislative meetings, tracking and monitoring bills, drafting and disseminating letters of support/opposition, activating grassroots action alerts and event planning for annual State Advocacy Day.

Kern Regional Center Executive Director
The Executive Director, acting in the capacity of chief executive officer, is charged by the KRC Board of Directors with providing visionary and inspirational leadership as well as being responsible for the successful day to day management of all aspects of KRC's operations. The Executive Director works at the pleasure of Board and is subject to corporate bylaws, policies and procedures. The Executive Director is responsible for keeping the Board of Directors informed of the status of KRC's operations and for advising it in matters of policy. As the face of KRC, the Executive Director shall present a strong and compassionate image to the communities served by KRC as well as at the state and national level. 


California Head Start Association Professional Development Manager: California Head Start Association is seeking a creative and business savvy professional to serve as the Professional Development Manager (PDM), leading all aspects CHSA's conferences and learning programs. Benefits include employer paid medical/dental/vision for employees, a monthly stipend for transportation / parking, a Simple IRA matching contribution after one year, and a cell phone allowance. Position is located in Sacramento. Learn more and apply HERE. (6/4/17)

First 5 Association of California Communications DirectorWe are seeking an experienced Communications Director to lead the First 5 Association's media and outreach efforts. The Director will develop and implement communications strategies for the organization including media relations and online communications. The Director will also write and/or edit a wide range of communications including news releases, op-eds, letters to the editor, blogs, and fact sheets, policy briefs, and other communications that supports the breadth of First 5 efforts and policy areas. Learn more about this position and how to apply here. (6/8/17)


The Supported Life Institute seeks a Self Advocacy Project Coordinator that will work with, facilitate, empower and support dedicated self-advocates and individuals with intellectual and developmental disabilities and advisors and facilitators involved with Self Advocacy Chapters throughout the Sacramento region in the Peer Advocacy Connection Project (PAC) and the Facilitation Services Project (FSP).   To learn about these important programs visit the SLI website at: http://supportedlife.org    and click on the Peer Advocacy Connection link. If this position matches your goals and interests, please email: dfaletti@supportedlife.org
. for a full job description.  No phone calls please


Senior Policy Director - The Arc of Minnesota
PROFILE:
Provides overall leadership and management of organization-wide public policy advocacy efforts. Represents The Arc Minnesota in contacts with elected officials, government officials, the media, and members of the public and partner organizations. The goal of the position is to achieve our public policy goals by strengthening our relationships with elected and government officials on a state and federal level and increasing the skills and involvement of our membership in public policy and grassroots activities. 

SALARY:  
$65,000 - $80,000 annually 


A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.

 
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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494