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Critically Important Senate Budget Hearing Thursday, May 10th - State Senate To Discuss Affordable Housing, Social Recreation, Camp, and Local Minimum Wage




ALL ADVOCATES NEEDED!

Californians with developmental disabilities, their families, and their service providers have been beating the drum this year about the dire situation in the community, and the California State Senate is ready to listen. The influential Senate Budget Subcommittee #3 has set a hearing date for May 10th, starting at 9:30 AM or upon adjournment of the Senate (whichever is later) to discuss three critical issues:

1) The Lanterman Coalition's proposal to use funds from the closure of the developmental centers to create new affordable housing options for people with IDD in the community;

2) The restoration of social recreation and camp as regional center funded services;

3) Temporary funding for community services impacted by unfunded costs (e.g. local minimum wage increases), as proposed by Assemblyman Holden and Senator Stern.

Everyone from the IDD community is highly encouraged to attend the hearing and make public comment about the importance of any or all of these issues. This will be the last opportunity for public comment on budget issues this year.

The hearing will be held at the State Capitol in room 4203. It will be a quick hearing with only four items on the agenda, so don't be late!

Jordan Lindsey, Executive Director, the Arc of California


FOCUS ON: New Housing Vouchers for People with Disabilities - Webinar and info

 

The U.S. Department of Housing and Urban Development (HUD) has announced a notice of funding availability for Mainstream Vouchers to assist non-elderly people with disabilties. HUD will award up to $100 million in funding to public housing agencies.

California providers of supportive living services who partner with their local public housing agency are perfect candidates for this grant. 

Applications for this opportunity are due by 8:59 PM PT on June 18, 2018.

To learn more about this oppertunity participate in the New Housing Vouchers for People with Disabilities webinar on Tuesday May 8 at 10:00 AM PT. Sponsored by the Technical Assistance Collaborative (TAC) and the Consortium for Citizens with Disabilities (CCD) Housing Task Force the webinar will provide strategies for partnering with state housing agencies and/or local housing authorities in addition to reviewing the NOFA requirements.

The webinar is free of charge but you must register here to attend. 

       

May is National Stroke Awareness Month




A stroke, often referred to as a brain attack, happens when blood flow to the brain is disrupted. There are physical and chemical changes that occur in the brain due to a lack of oxygen and other nutrients when a person experiences a stroke. The Centers for Disease Control and Prevention report that stroke is one of the leading causes of long-term disability. Although a stroke can happen at any age the risk increases with age and the majority occurs in people over 65 years of age. The good news is research shows up to 80% of strokes are preventable. It starts with understanding your personal risk for stroke and knowing what is modifiable and what is not. Modifiable factors include things like managing chronic conditions (diabetes, high blood pressure, high cholesterol, heart disease, obesity, etc.) as best you can, smoking, diet and physical activity can all be managed to lower the associated risks of stroke.

This year the American Heart and American Stroke Association(s) released updated guidelines for the early management and treatment of acute ischemic stroke. The most important thing you can do if you think someone is having a stroke is call 9-1-1 because every second counts. Treatment options are far greater and have better outcomes when immediate medical attention is given. The AHA and the ASA want everyone to know the warning signs of a stroke F.A.S.T which is (F) face drooping, (A) arm weakness, (S) speech difficulty and (T) time to call 9-1-1.

For many people the warning signs may be obvious but for others who may have challenges with speech, mobility issues of other disabilities the warning signs could be difficult to detect. Unfortunately, there is not a lot of readily accessible information specific to recognizing stroke warning signs in people with some of these challenges but here are a few additional warning signs that may occur when someone is experiencing a stroke:

  • sudden paralysis or weakness of the face, arms, hands or legs, usually on one side only
  • numbness in the limbs, on the face or on any part of the body
  • problems swallowing
  • loss of normal vision in one or both eyes
  • an extreme or unusual headache, which may start like a thunderclap
  • loss of consciousness or extreme drowsiness


Being proactive is essential to prevention - if you are a caregiver, family member or friend of a person who has a disability that might make it difficult to detect the warning signs of a stroke work together to develop a plan. It is important to assess and manage modifiable risk factors and identify possible signs that may be specific to the individual. If you know your loved one is at risk encourage them to develop a Supported Health Care Decision-Making Agreement so you and/or another person can help support their efforts and work with their health care provider to develop a plan for stroke risk reduction. To learn more about Supported Decision-Making click here and here.


To learn more about strokes, warning signs and prevention click here.



A woman stands in front of the California state Capitol and smiles
Teresa Anderson, Policy Director, The Arc of California

D.C. Was A Success!

Members of the California I/DD community meeting with Senator Dianne Feinstein to advocate for our rights.

Last week advocates from California joined more than 1000 advocates from across the nation in Washington D.C. to push forward the disability community's federal priorities. The California delegation met with both Senator Feinstein and Senator Harris' office, and had several meetings with members from the House. Issues discussed included protection of the ADA, preserving and enhancing Medicaid funding, and funding the Money Follows The Person program.

CUTTING THROUGH THE FOG: How I Almost
Overcame One of My Biggest Triggers

A self-advocacy column by Eric Gmeinder


Almost a year after I and several other Futures Explored students had filmed interviews, The Nature of Autism is nearing completion. Autism is known for causing sensory issues, especially with noise, and I and one other student cited crying children as a specific noise we hated. In fact, I would say that crying babies are tied with loud vehicles as the sound I hate most for loudness alone. However, loud vehicles stoke my ire more because their drivers know better and young children don't.

(Preschool TV doesn't fare much better in my book. I used to think the reason I disliked these shows was because I'd outgrown them, but it may have more to do with the fact that many of them actually do stink.)

It's actually fairly common for people to hate little children when they were the same age I was. I was also the youngest in my family and had no real exposure to them until I became an uncle within the past year. As the years passed, my tolerance of them outside of their crying grew, for a few reasons.

One of the few times I thought of being anything other than a filmmaker was in my late teens and early twenties. High school is often the hardest time of students' lives, and it was far from perfect from me. But it was still a mile ahead of elementary school, which I'd tried (and succeeded at) forgetting about. One morning the fall after high school, I woke up and suddenly remembered. Over the next few years, I occasionally entertained the idea of being an instructional assistant, to save other students from having the same bad experiences that I had with mine.

I'd previously thought about teaching, but I still didn't want to raise kids myself. But at twenty-two and a half, I got a feeling that I did, in fact, want to be a father, a sentiment that, until the most recent generations, was virtually nonexistent in both the autism community and the community I identify with within the LGBT community. Again, it has somewhat to do with wanting to make up for things in my own childhood that I'd like to forget. It also has to do with taking the qualities people praise me for and imparting them more thoroughly than I could have if I were an educator.

As for the "almost" in the title, on my worst days, crying children still bother me to the extent that almost I change my mind back to how I used to feel. But other than that, I've spent the past three and a half years feeling as ready as I'll ever be to be Father of the Year.


Standing Together to Stand Out


"If we must have justice, we must be strong; if we must be strong, we must come together."
-Marcus Garvey

The 'Build A New Narrative' leadership training in the Tri-Valley area on Saturday was attended by over 80 individuals representing the Hispanic, Asian, Black/African-American, Filipino, Native American, White and other Ethnicities and Races. Mary Lim-Lampe and Karym Sanchez, Lead Community Organizers representing Gamaliel of California, conducted the trainings on how to be strong, how to have power. 

Personal stories about power were shared. Everyone had a chance to practice building power by focusing on self-interests, meeting one-on-one with others to build relationships. How to cut issues and how to take-action were taught and practiced.

Each group described some of their major issues. Latino parents from the Proyecto Esperanza in Tracy and Stockton passionately described the issue of their children not being able to access equal services in public schools. Zarina Kiziloglu of the Islamic community has been coordinating the Tri-Valley Organizing Project. Family members of her group expressed deep concern and fear of the discrimination towards Muslims in the Tri-Valley area and throughout the country. The Disability Justice Group from Oakland are frustrated and tired at the way their staff are treated. Direct Support Professionals, their support staff and caregivers, are being paid minimum wages that are lower than fast food restaurant workers. Racial disparity in services to people with disabilities from families of color is unacceptable.

Action planning followed, with each group deciding on their own next steps locally, but also to continue coming together as a larger group statewide. 'Divide and conquer' has been how the powerful keep other people powerless. We can no longer be divided and kept in separate special interest group silos. Each of the groups attending are all fighting for the same civil and human rights. "If we must be strong, we must come together." -Garvey Together we stand, taller and more powerful!

Tim Hornbecker, Advocacy Coordinator, the Arc of California


Job Opening at The Arc of California: 
DIRECTOR OF COMMUNITY ORGANIZING


Click here for a sharable link to the online job description. 

The Arc of California seeks a dynamic, experienced, and passionate Director of Community Organizing to lead statewide organizing efforts for the intellectual and developmental disability community. The Director will pursue a vision of justice and equity for the I/DD community and will help to build regional power through trainings, trust building, and coalition development.

The Arc of California, established in 1950, is a statewide advocacy organization with 23 chapters throughout the state dedicated to advancing and protecting the human rights of people with intellectual and developmental disabilities.

Essential Qualifications and Skills
  • An idealist, visionary, and optimist;
  • Ability to get a lot of work done in a short of amount of time and do it while having fun;
  • Three to five years organizing experience;
  • Demonstrated competent communication skills, both oral and in writing, for a range of audiences (students, public officials, administrators, press, public, clergy, etc.);
  • Ability to develop power analysis that result in clear and winnable organizing strategies;
  • Experience working on public policy;
  • Fluent in English and at least one other language, preferably Spanish;
  • Experience in development of accountable and responsible leadership structures;
  • Proven experience in developing leaders;
  • Ability to grasp and distill complex concepts into clear and morally compelling messages;
  • Ability to inspire and motivate people to act;
  • Coalition builder with ability to work with diverse constituents and allies;
  • Tech savvy and computer and mobile proficient;
  • Team player who takes initiative and is entrepreneurial; must be able to work independently and collaboratively;
  • Car and drivers' license required;
  • Demonstrated commitment to human and civil rights in the health and human services sector;
Areas of Responsibility 
  • Contribute to a collaborative team at The Arc California;
  • Initiate community discovery process for each region;
  • Engage in at least 50 one-on-one meetings with identified regional advocates and leaders within 12 months and develop a political, cultural, economic, religious, social and relationship analysis of the region based on the one-on-one conversations;
  • With the guidance of the Executive Director and Organizing Committee, develop and execute strategic plan for identified regions;
  • Lead recruitment, research, and leadership development efforts;
  • Coordinate and attend regular meetings in identified regions;
  • Support the creation of sustainable and powerful community coalitions;
  • Report to Executive Director on successes, failures, roadblocks, and opportunities;

Location: Downtown Sacramento, CA
Travel: 20-40%
Benefits: The Arc California provides full health and dental insurance and a generous PTO schedule.

Application Process:
If you are interested in joining The Arc California, please email the following to Christian McMahon at christian@thearcca.org:
1) Resume
2) Cover letter that expresses the top reason/s you are interested in this position. Please include in your cover letter your required salary range. Address cover letter to "The Arc California Team"
3) At least two professional references

The Arc California does not discriminate on the basis of sex, age, religion, race, gender identity, sexual orientation or disability. The Arc California endorses and supports the intent of the Americans with Disabilities act of 1990 (ADA) and the California Fair Employment and Housing act (FEHA) and is committed to providing reasonable accommodations to qualified individuals with disabilities who are applicants or employees who need accommodations.

Text reads _What the New Tax Law Means for People with Disabilities_ New National Policy Matters Available _this image is a clickable link_

Get Involved



The Arc of the United States wants to hear from you about the disproportionate rate of minority students in special education. Click here to learn more and share your feedback. 
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NEWS ARTICLES



 

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FUNDING OPPORTUNITIES



 
 
In partnership with The California Endowment and Sierra Health Foundation, this year The Center will award a total of $100,000 to support advocacy-related capacity building and leadership development activities for youth-focused nonprofit organizations led by people of color serving in Northern California and the San Joaquin Valley. 
Funding is open to youth-focused organizations led by people of color working to eliminate health disparities that have an interest in increasing their organizational capacity to address issues of racial equity. 
Applications are due by May 14, 2018, at 1 p.m.

The Community Transportation Association along with its partners the National Association of Area Agencies on Aging and the Institute for Community Inclusion of the University of Massachusetts-Boston is pleased to announce the availability of a new round of funding for local inclusive planning projects. CTAA, with financial support from the United States Department of Health and Human Services, Administration for Community Living, and in collaboration with other federal and national partners, is making available grants of up to $35,000 each for up to 20 organizations for a six-month period. The new projects are expected to adopt inclusive strategies that fit their communities and build upon learning from previous projects. It is anticipated that the experience from these grants will add to the knowledge garnered from previous project and help to build recognition and support for inclusive planning across the U.S.

The purpose of the ARRT program (funded through NIDILRR's Disability and Rehabilitation Research Projects and Centers Program) is to provide advanced research training and experience to individuals with doctorates, or similar advanced degrees, who have clinical or other relevant experience. ARRT projects train rehabilitation researchers (including those with disabilities) with particular attention to research areas that support the implementation and objectives of the Rehabilitation Act and that improve the effectiveness of services under this law.

More Grants Can Be Found at https://www.acl.gov/grants


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CAREER LADDER

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a "career ladder" in their chosen profession.

The Arc of California seeks a dynamic, experienced, and passionate Director of Community Organizing to lead statewide organizing efforts for the intellectual and developmental disability community.  The Director will pursue a vision of justice and equity for the I/DD community and will help to build regional power through trainings, trust building, and coalition development.

The Chief Executive Officer is responsible for the management and operation of all programs and services provided by The Arc San Francisco, for implementing all policy decisions of the governing Board, and for employing and supervising a staff whose dedication and high morale creates a healthy working environment and produces quality of service more than adequate to achieve Board objectives. S/he oversees the administrative and fiduciary functions of the agency. S/he represents the agency to the community, and builds strong relationships with key stakeholders, agency staff, and the Board. S/he and professional advancement staff partner with the Board in fundraising to support The Arc programs. S/he will be guided by the priorities, all discussed in this prospectus, cited by the Board in the 2016-2019 Strategic Plan, "Building Our Future: The Way Forward."

Arc of Los Angeles and Orange Counties, Chief Operations Officer
Make a difference in people's lives and enrich your career.  The Arc Los Angeles & Orange Counties is a quality driven non-profit agency, with 13 programs, including a production and packaging center, serving hundreds of individuals with intellectual and developmental disabilities.  We have an opening for a full-time, experienced Chief Operations Officer. As a key member of the Executive Management team, the Chief Operations Officer will oversee and ensure the agency has the proper operational controls, administrative, and reporting procedures.  Additionally, the successful candidate will act as the agency safety compliance officer.
To be considered for this position send your resume and a cover letter to: hrarclaoc@yahoo.com 

Children's Services Division annually supports almost 700 children with intellectual and developmental delays and behavioral health needs and their families. 

The Chief Executive Officer/President enables PWI to adapt to and influence a dynamic environment. Working with and reporting to the Board of Directors, this role helps set policy and strategic leadership in concert with the mission, vision, purposes, and values of the organization. The CEO/President serves as the principal external representative of the organization and manages internal systems and complex processes of the organization to achieve effective and efficient operations. This position also directs budget development, fiscal responsibility and assures successful financial performance.

A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.



 
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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494