• REMEMBERING JIM STREAM, by Tony Anderson & Jim Baldwin
  • Advocacy: California Legislature Takes Action on State Budget - Some Wins & Some Losses
  • Policy: Attorney General's Senior Staff to Meet with Us Today On the Civil Rights of People with Disabilities
  • Public Health: New Research In Shared Decision-Making For The Pediatric Population
  • Self-Advocacy: Cutting Through The Fog - A Social Odyssey
  • Focus On: American Bar Association - Disability Is Under Siege
  • New Reports & Studies Related to Intellectual & Developmental Disabilities
  • Jobs, Funding Opportunities, & More


REMEMBERING JIM STREAM
by Tony Anderson & Jim Baldwin


Last week we lost Jim Stream, Executive Director of The Arc of Riverside County, to his battle with cancer.  For those of you who were honored to know him you know the magnitude of this loss and for those who didn't know him it is likely he has impacted your life nevertheless.  Jim and Dr. Nora Baladerian broke ground at the turn of the century on major California initiatives to address crime and abuse of people with developmental disabilities and the unequal justice outcomes for people with developmental disabilities.  Promoting and introducing us all to the important work of Dr. Joan Petersilia, Dick Sobsey, Dan Sorenson, and the late Robert Perske.   For the past 15 years he advocated and consulted on every criminal justice bill in California that impacted people with developmental disabilities.  Jim also introduced tens of thousands of people to the impact of drinking during pregnancy and the need for specialized services for people with Fetal Alcohol Spectrum Disorders and Fetal Alcohol Syndrome.  He was constantly trying new ways to combat the systematic disrespect and use of the R word and saw the connection to the national trends of abuse of people with disabilities.   One major effort on this issue was the development of the National Wall of Respect which is a beautiful mosaic built by people with developmental disabilities.  One idea Jim always relayed to advocates was a quote from the president's committee on intellectual and developmental disabilities that all the laws and policies that we create will never impact the problem of disrespect until we can change the hearts and minds of people in our country (paraphrased).  Many of us want a career that matters where we can leave a mark on this world after we are gone.  Jim Stream clearly made the world a better place and I am forever grateful to Jim and the impact he has made and the influence he has had on my work.
- Tony Anderson
_________________

On Friday morning we lost a good friend....Jim Stream Executive Director of The Arc of Riverside County.  Jim passed away after a two year battle with cancer, but his legacy and his indelible mark has been left on our IDD system and organization to shape the future of California's services to people with Intellectual and Developmental Disabilities and their Families for decades yet to come..
 
Along with Peter Bowers, Barbara Maizie, and Chad Carlock he developed the Keep The Lanterman Promise curriculum that has been an outstanding training tool for Clients and their Families across California.  Many of our colleagues have been through the Train-the-Trainer classes of the Keep The Lanterman Promise curriculum, which will continue to keep the valuable lessons and insights of this excellent training alive for future Consumers and their Families.
 
Jim Stream has been instrumental is getting legislation passed, trailer bill language written and re-written for the betterment of the community of people with IDD, The Arc California Member Chapters and local service providers throughout California. Jim has led the charge for funding in California for the Lanterman Act to increase local provider rates and keeping Arc Chapters in business and helping them to increase their programs to serve more people with IDD and their Families. Jim Stream's EXAMPLE is one that we all hope to follow and try to duplicate as we face the future.
 
Thank You Jim Stream for everything.....You Will Be Missed!
- Jim Baldwin


Jim Calling Fred to Congratulate Him on Becoming Mayor, We were in New Mexico and Jim Stream wanted to memorialize Fred's victory with a picture of us congratulating him (with Jim Baldwin & Tony Anderson).

Jim Stream as a John Travolta look alike.  Jim knew how to have a good time.  Worked hard and played hard.




CALIFORNIA LEGISLATURE TAKES ACTION ON STATE BUDGET - Some Wins & Some Losses
Jordan Lindsey,
Executive Director,
The Arc of CA

Late last week the California Legislature mostly finalized the state budget bill that they will send to the Governor for signature.  Hanging over the head of state lawmakers is the uncertainty of the federal budget and the proposed massive reductions to health & human services programs proposed in President Trump's budget.  As a result a cautious budget was passed and important items - such as SSI/SSP increases, social recreation, and camping - were rejected.  Nevertheless, California's disability community still won a few important issues, most notably the removal of the cap on respite services and restoring dental benefits for Medi-Cal.  Below is a summary of the actions taken:

  • Lifting the cap on respite. - approved
  • Restoring social recreation and camping. - rejected
  • Restoring dental as an optional benefit for Medi-Cal. - approved
  • Cost Of Living (COLA) increase for SSP portion of SSI/SSP. - rejected
  • Convene a working group with DDS to consider simplified processes for providers seeking rate adjustments under certain conditions, and submit report to the Legislature. - approved
  • Require the Legislative Analyst Office to conduct a report on the options and implications of retaining DC funding for community based services. - approved
  • Allow consumers 18-22 years old who participate in a paid internship or competitive integrated employment, and are also eligible for special education and has not yet received a diploma, to receive an exemption allowing them to also receive day program, vocational education, work services, independent living program, or mobility training and related transportation services from a Regional Center. - approved
  • Allow community based organizations to apply for grants to receive money from Regional Centers to promote equity and reduce disparities in the purchase of services. - approved 
  • Increasing the rate for vouchered community-based training service from $13.47 to $14.99, and increasing the rate for supported employment services provided to consumers receiving individualized services and for group services from $34.24 to $36.57. - approved


POLICY & ADVOCACY

Attorney General's Senior Staff to Meet with Us Today On the Civil Rights of People with Disabilities
People with disabilities are victimized by violent crime at more than twice the rate of the general population.

Many of these crimes -- we think most -- meet the legal definition of a hate crime: "a criminal act committed, in whole or in part, because of one or more of the following actual or perceived characteristics of the victim: ... (1) Disability...."

Yet law enforcement agencies rarely recognize these crimes as hate crimes. A look at the official statistics would lead you to think there are almost no anti-disability hate crimes in California. In 2015, the most recent year for which statistic are available, there were only four reported. 

Sometimes law enforcement doesn't even recognize these attacks as crimes at all. They sometimes are treated as merely bullying or civil matters. 

Or if law enforcement do realize a crime has been committed, the crime may not be treated as a felony "dependent adult abuse," because law enforcement may not realize that an adult with a disability is legally a "dependent adult" although he or she lives independently.

Those are some of the big reasons why the Arc & United Cerebral Palsy California Collaboration has made these issues a key part of our advocacy for several years.

In that time, we've had some successes: 

We sponsored and enacted the Crime Victims with Disabilities Act that makes it clear that law enforcement agencies retain responsibility for these crimes and can't delegate it to Adult Protective Services or Local Long-Term Care Ombudsman programs

We sponsored and passed a bill last year making it easier for district attorneys to prosecute these offenders.

We actively supported successful bills to make incremental improvements including improving police training and opening Ombudsman investigation data to police.

We served as subject-matters experts to the state Commission on Peace Officer Standards and Training in making police training videos on hate crimes and elder/dependently adult abuse.

We worked with the other civil rights groups and the California Police Chiefs Association to develop a model hate crimes brochure for law enforcement agencies to give to victims and the public, making clear that anti-disability crimes are hate crimes.

And earlier this year, we brought together a broad coalition of civil rights groups to ask the new state attorney general, Xavier Becerra, to work with us on hate crimes and a variety of other civil rights issues.

That coalition effort bore fruit last month, when Attorney General Becerra directed his senior staff to meet with us and the other civil rights groups to hear our conc
Greg deGiere
Director of Policy & Advocacy, The Arc/UCP California Collaboration
erns and talk about what the attorney general can do about them.

The meeting is today.
We know that other civil rights groups there today will support us on many of these asks.

We shall overcome.


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Teresa Anderson, Prevention Coordinator
HEALTH & WELLNESS ACTIVITIES

New Research In Shared Decision-Making For The Pediatric Population
Teresa Anderson, MPH 

Shared decision-making, supported decision making, collaborative decision-making are all terms we have likely heard before in the context of people with intellectual and developmental disabilities (I/DD) making choices and decisions, based on their own preferences, with help of support of those close to them.  There are several variances on the definition of shared decision-making (SDM) but the general principles are: at least 2 parties are involved, information is exchanged in both directions, all parties are aware of all the options and all parties bring their knowledge and values to the decision-making process. In the context of health care SDM largely comes from adult medicine however a recent clinical report from the American Academy of Pediatrics suggests SDM could benefit children with disabilities and their families. The clinical report Shared Decision-Making and Children with Disabilities: Pathways to Consensus provides a framework for discussion and guidance in developing a collaborative relationship. 

Families that have children with special health care needs can certainly attest to the importance of timing for making health care decisions whether they are routine or crisis oriented decisions.  They can also, with great eloquence, explain the fear, trust, and faith that they place in the doctor caring for their child. Building a relationship that includes all parties can help reduce decisional conflict and promote family centered care. The clinical report concludes recommending future SDM research in the pediatric population, emphasis on including children in SDM (when cognitively able), development of SDM support technology and implementing the application of SDM into daily clinical care. 
To read the report click here:

Many families in California that have children with complex medical condition, served by the California Children's Services (CCS) Program, are preparing for a significant change as the CCS program transitions into managed care. The Department of Health Care Services along with many stakeholders have developed a "Whole-Child Model" to be implemented in specified counties, no sooner than July 2018.  The Whole-Child Model is an organized delivery system that will provide comprehensive, coordinated services for children and youth with special health care needs. As families and providers make the transition to the whole child model of care SDM can be very helpful in building a health care partnership and promoting family centered care. The next CCS Stakeholder meeting is:

July 11, 2017 - CCS AG Stakeholder Meeting
First Floor Conference Room
1700 K Street, Sacramento, CA
10 a.m. - 3 p.m.


Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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CUTTING THROUGH THE FOG
Eric Gmeinder, Self-Advocate and Guest Writer

A Self-Advocacy Column
by Eric Gmeinder

A Social Skills Odyssey

I spent most of my young life accommodating social skills that most neurotypicals perceive to be poor-from revealing a family member's Christmas gift at age seven to being too shy to tell people they were bothering me. But a breaking point came last fall, when I was in a restaurant by myself, had a crush on another patron who came in, and was too overcome with excitement to interact with them. It became one of the single most important days in my life, as it completely made me rethink my social interactions in every way.

Perception has been a leading issue for me. I have a history of thinking people did things to me on purpose when they didn't, be they elementary school classmates who stepped on my hand getting up from presentations, or family members who say things that rub me the wrong way. And something else I'm still learning is that the same topic will not be as important to everyone, if it is important at all.

While I was on vacation this past April, one of the things I accomplished was to interview a man in his home on a topic I am passionate about. Before that, I practiced with a Futures Explored instructor, and the instructor and I established that interviews entail follow-up questions and comments that provide the basis for further conversation. Later I realized that ordinary conversations are conducted in the same way as interviews.

Another problem I recently realized I had is that I assume people don't feel strongly about something if they don't show it. For example, it puzzles me how much the Dalai Lama verbally expresses his anger at Chinese imperialism despite embodying diplomacy. But there is a currently obscure issue that angers me just as much, so I made an art campaign about it.

I recently checked out and read a library book purporting to be a social skills manual for adults with Asperger's. (Asperger's was removed from the DSM, but the use is just the same.) The stakes are high, but I hope to prove to everyone I know that there's a difference between a disability and an inability.


FOCUS ON: American Bar Association - Disability Is Under Siege

The American Bar Association recently published a new issue of Human Rights Magazine on the topic of "Disability Rights Under Siege."  

There are great articles by many advocates you may be familiar with, such as Eve Hill, Alison Barkoff, Sue Swenson, Ari Ne'eman, Senator Casey, Jennifer Mathis, and more. We are happy that the ABA has chosen to place a spotlight on disability rights at this critical time to help these issues reach a wider, national audience - they haven't devoted an issue of this magazine to disability issues in over a decade.

Read the great articles here.



SIGN UP FOR OUR CALIFORNIA ACTION ALERTS
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UPCOMING



June 13, 2017,
The Disability Action Coalition is hosting its 13th Annual Disability Capitol Action Day at the Cesar E. Chavez Plaza in downtown Sacramento.  

June 12-27
CalABLE outreach events throughout the state

2017 U.S.C. UCEDD Issues in Intellectual & Developmental Disability (I/D.D.) What People with Disabilities & Families Need to Know 

July 30-August 5th
Angela Center, Santa Rosa
Gamaliel Leadership Training
Teaching ordinary citizens to unleash the power within themselves 
Phone: 312-357-2639 E-mail: 
info@gamaliel.org 
Web: www.gamaliel.org 

October 5-6, 2017
31st Annual Supported Life Conference
"Designing Dreams: Blueprint for a Meaningful Life"
Crowne Plaza Sacramento Northeast

November 2-4, 2017
 
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FUNDING OPPORTUNITIES



 
Services for Individuals with Developmental Disabilities
The purpose of this project is to increase community integration and independence of individuals with developmental disabilities and to improve the quality of home and community-based services (HCBS) by developing and testing one or more model approaches of a coordinated and comprehensive system that includes two interrelated core components for enhancing and assuring the independence, integration, safety, health, and well-being of individuals living in the community: (1) Community Monitoring and (2) Community Capacity Building. 
HHS 

The Following Grants Can Be Found at https://www.acl.gov/grants

HHS-2017-ACL-AOD-DDUC-0220
University Centers of Excellence in Developmental Disabilities Diversity Fellowships
HHS-ACL
Posted
05/05/2017
07/11/2017
PAR-16-215
Preclinical Research on Model Organisms to Predict Treatment Outcomes for Disorders Associated with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
09/07/2019
PAR-16-216
Outcome Measures for Use in Treatment Trials of Individuals with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
05/07/2019
HHS-2017-ACL-AOD-DNIQ-0221
Living Well-Model Approaches for Enhancing the Quality, Effectiveness and Monitoring of Home and Community Based Services for Individuals with Developmental Disabilities
HHS-ACL
Posted
05/25/2017
07/24/2017
ED-GRANTS-051917-002
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: Model Demonstration Projects To Improve Algebraic Reasoning for Students With Disabilities in Middle and High School CFDA NUmber 84.326M
ED
Posted
05/19/2017
07/03/2017
ED-GRANTS-052217-002
OSERS: OSEP: National Center for the Development and Dissemination of Digital Open Educational Tools and Resources Supported by Evidence to Enhance Personnel Preparation and Professional Development for Educators of Students with Disabilities CFDA 84.325E
ED
Posted
05/22/2017
07/06/2017






HHS-2017-ACL-CIP-DNTC-0233
Strengthening Coordinated Transportation Systems for People with Disabilities and Older Adults
HHS-ACL
Posted
05/26/2017
07/31/2017
ED-GRANTS-041917-001
OSERS: OSEP: Personnel Development to Improve Services and Results for Children with Disabilities: Early Childhood Personnel Center CFDA Number 84.325B
ED
Posted
04/19/2017
06/05/2017
HHS-2017-ACL-AOD-DDTI-0218
Minority Serving Institutions Partnership Planning Grants
HHS-ACL
Posted
05/05/2017
07/06/2017
HHS-2017-ACL-AOD-HAVA-0231
Help America Vote Act (HAVA)
HHS-ACL
Posted
05/18/2017
07/12/2017
PD-08-1698
Developmental Sciences
NSF
Posted
03/23/2009
07/17/2017
PAR-15-149
Enhancing Developmental Biology Research at Academic Research Enhancement Award Eligible Institutions (R15)
HHS-NIH11
Posted
03/23/2015
09/11/2017
PAR-15-196
Developmental AIDS Research Center on Mental Health and HIV/AIDs (P30)
HHS-NIH11
Posted
05/01/2015
09/14/2017
PAR-16-396
NICHD Laboratory of Developmental Biology (R24)
HHS-NIH11
Posted
08/11/2016
05/30/2019
PAR-17-238
Developmental Centers for AIDS Research (P30)
HHS-NIH11
Posted
03/30/2017
08/17/2019
ED-GRANTS-052417-002
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Educational Materials in Accessible Formats for Children and Students with Visual Impairments and Print Disabilities CFDA Number 84.327D
ED
Posted
05/24/2017
07/10/2017
ED-GRANTS-052217-003
OSERS: OSEP: Personnel Development to Improve Services and Results for children with Disabilities: National Center for Improving Teacher and Leader Performance to Better Serve Children with Disabilities CFDA Number 84.325A
ED
Posted
05/22/2017
07/06/2017
HHS-2017-ACL-AOD-DDTI-0219
Diversity and Inclusion Training Action Plan Implementation Grant
HHS-ACL
Posted
05/09/2017
07/10/2017
ED-GRANTS-042117-001
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Stepping-up Technology Implementation CFDA Number 84.327S
ED
Posted
04/21/2017
06/05/2017
ED-GRANTS-052417-003
OSERS: OSEP: Research and Development Center on Developing Software to Adapt and Customize Instruction in Digital Learning Environments to Improve Results for Children with Disabilities CFDA Number 84.327A
ED
Posted
05/24/2017
07/10/2017
PD-17-5342
Disability and Rehabilitation Engineering
NSF
Posted
02/22/2017
10/20/2017
ED-GRANTS-050217-001
OSERS-OSEP: Technical Assistance and Dissemination to Improve Services and Results for Children with Disabilities: National Technical Assistance Center for Inclusive Practices and Policies CFDA Number 84.326Y
ED
Posted
05/02/2017
06/16/2017
HHS-2017-ACL-NIDILRR-REGE-0208
Rehabilitation Engineering Research Centers (RERCs) Program: RERC on Technologies to Promote Exercise and Health Among People With Disabilities
HHS-ACL
Posted
05/31/2017
07/31/2017
ED-GRANTS-051917-001
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: National Center To Enhance Educational Systems To Promote the Use of Practices Supported by Evidence CFDA Number 84.326K
ED
Posted
05/19/2017

 


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here

California Head Start Association Professional Development Manager: California Head Start Association is seeking a creative and business savvy professional to serve as the Professional Development Manager (PDM), leading all aspects CHSA's conferences and learning programs. Benefits include employer paid medical/dental/vision for employees, a monthly stipend for transportation / parking, a Simple IRA matching contribution after one year, and a cell phone allowance. Position is located in Sacramento. Learn more and apply HERE. (6/4/17)

First 5 Association of California Communications DirectorWe are seeking an experienced Communications Director to lead the First 5 Association's media and outreach efforts. The Director will develop and implement communications strategies for the organization including media relations and online communications. The Director will also write and/or edit a wide range of communications including news releases, op-eds, letters to the editor, blogs, and fact sheets, policy briefs, and other communications that supports the breadth of First 5 efforts and policy areas. Learn more about this position and how to apply here. (6/8/17)


The Supported Life Institute seeks a Self Advocacy Project Coordinator that will work with, facilitate, empower and support dedicated self-advocates and individuals with intellectual and developmental disabilities and advisors and facilitators involved with Self Advocacy Chapters throughout the Sacramento region in the Peer Advocacy Connection Project (PAC) and the Facilitation Services Project (FSP).   To learn about these important programs visit the SLI website at: http://supportedlife.org    and click on the Peer Advocacy Connection link. If this position matches your goals and interests, please email: dfaletti@supportedlife.org
. for a full job description.  No phone calls please


Senior Policy Director - The Arc of Minnesota
PROFILE:
Provides overall leadership and management of organization-wide public policy advocacy efforts. Represents The Arc Minnesota in contacts with elected officials, government officials, the media, and members of the public and partner organizations. The goal of the position is to achieve our public policy goals by strengthening our relationships with elected and government officials on a state and federal level and increasing the skills and involvement of our membership in public policy and grassroots activities. 

SALARY:  
$65,000 - $80,000 annually 


A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.

The Legislative Director position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Advocacy Director. The Legislative Director provides overall direction to DRC's public policy activities with the goal of increasing DRC's legislative presence.  The position supervises legislative advocates.


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494