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November 6, 2017


IN THIS MEMO:
  • The Arc National Convention was a Success!
  • Community Matters For All - SHARE YOUR STORY!
  • November is National Diabetes Month - What Does That Mean for I/DD?
  • "Connection Is Universal" by AT&T
  • Focus On: DDS Public Meetings, Reducing Purchase of Services Disparities
  • "Talk About Sexual Violence" Videos for Health Care Professionals
  • Upcoming Events, News, Articles, and Research
  • Jobs, Funding Opportunities, & More


The Arc National Convention in San Diego - 
A Huge Success!

California attendees at The Arc National Convention strengthen their network and commitment.

This last week The Arc family from around the country gathered in San Diego to learn, be inspired, and build community.  The convention's agenda included best-practices seminars, policy information, and the self-advocacy symposium.  Some of the highlights included:

The Arc's Catalyst Award Winners
  • Corporate Advocate of the Year - Apple 
  • Self-Advocate of the Year - Lois Curtis 
  • Television Show of the Year -Speechless, Scott Silveri, 20th Century Fox Television, ABC, and the lead cast of the show 
  • Legal Advocate of the Year -Skadden, Arps, Slate, Meagher, and Flom, LLP 
The Inclusion Agenda - How Media, Fashion & Corporations are Supporting Inclusion
Featuring:
  • Founder and President of Changing the Face of Beauty (nonprofit)
  • Jamie Brewer, actress and advocate (film)
  • Jonathan Murray, Producer and Creator of "Born This Way" (t.v.)
  • Jeff Blade, CEO of Matilda Jane Clothing (fashion)
The Future of Wellbeing - Inspiring the Next Generation of Disability Advocates, with Deepak Chopra

The Arc of California congratulates all of the staff and volunteers for a hugely successful convention!


POLICY & ADVOCACY

Community Matters for ALL
By: Nicole Jorwic, Director of Rights Policy, The Arc of the United States



During the recent fights to save the Medicaid program from devastating cuts and fundamental restructuring, the home and community based services (HCBS) that individuals with disabilities and their families rely on were in greatest jeopardy. These services include everything from residential supports, day supports, and employment services, to personal attendant care. This is because under federal Medicaid law, HCBS are OPTIONAL while other services such as institutional services are MANDATORY. So if the cuts included in the recent health care bills would have made it down to the state level, HCBS would have been the first thing on the chopping block. This new reality would have been devastating to individuals and families.

Those HCBS dollars are the ones that, over the last several decades, have funded the desperately needed shift from institutional placements and segregated services for individuals with disabilities to a full life in their communities.

I have been lucky in my life to be a part of a community that involved all individuals in every aspect of the community, including my brother Chris who has autism. Chris is 28, lives in Illinois and receives Home and Community Based Services through the Medicaid program to remain in the same community where he has lived his whole life.

Not only do HCBS benefit the individuals with disabilities who receive them to stay in their community, it benefits every community member. Because of the services that Chris receives he is able to live in his home, do things that he chooses during the day out in the community, interacting with people who do not have disabilities, and gets the support that he needs to communicate through typing. Chris has a full life, and Medicaid HCBS have made that possible. However, it is never lost on me that if Chris had been born 20 or 30 years earlier, his life would most likely look very different because of his significant level of needs. Chris would have languished in an institution, away from his family, friends and his COMMUNITY never learning to express his wants, insights and amazing sense of humor. This knowledge is why I feel so passionately about making life in the community a reality for all individuals with disabilities, no matter their level of need.

The disability community showed our strength during the fights to protect Medicaid, and now we must rise up again to show the importance of ensuring that HCBS dollars are spent in the community and not in settings that isolate individuals from interacting with all parts of their communities. We need to show that life in the community is possible for ALL! The best way to send that message is to share stories about why community matters in YOUR life, and what your life looks like in the community.

Chris has already written his own story and submitted it, please take a moment to do the same. You can enter your information here. We will use these stories to show the need to increase the investment in HCBS dollars and to ensure that capacity is built to support every individual in their communities



HEALTH & WELLNESS

November is National Diabetes Month 
 
by Teresa Anderson, MPH




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Teresa Anderson,
Prevention Coordinato
More than 30 million adults in the U.S. have diabetes and 1 in 4 don't even know they have it.  There are 3 different types of diabetes - type 1, type 2 and gestational (pregnancy related) - and according to a 2017 National Diabetes Statistics Report 90%-95% of all diabetes cases are type 2.  Even more alarming is the markedly higher incidence and prevalence rates of diabetes (specifically type 2) in adults with intellectual and developmental disabilities.  Research shows that the prevalence rate of diabetes in adults with IDD is 2 to 3.3 times higher (depending on age group) than people without IDD. The literature suggests several different reasons, many quite complex, for the significantly higher rates of diabetes as well as strategies and recommendations for interventions that could reduce the rate of diabetes in people with IDD.

Health and wellness interventions are an important strategy toward improving health outcomes and reducing the incidence of diabetes for people with IDD.  Policy research shows there are changes that can be made to reduce diabetes among people with IDD and some of these changes include:

  • Increase targeted outreach efforts for diabetes screening programs specific to people with IDD (identifying pre-diabetes is critical to preventing diabetes)
  • Allocate funds for public health surveillance dedicated to finding out how people with IDD manage their blood sugar levels
  • Provide programs and access to programs that increase knowledge about healthy living - nutrition, exercise, mental health and overall wellness
  • Increase access to education about preventing and managing diabetes specifically designed to meet the needs of people with IDD
  • Increase research on the incidence and prevalence of diabetes among people with IDD.

Continuing to advocate for inclusion in all health promotion programs and for public health dollars dedicated to increasing public health interventions for people with IDD is critical to improving health outcomes.  For more information about Diabetes and advocating for change visit:







"Connection Is Universal"
Sponsored by AT&T

The Arc of California thanks AT&T for their continued support of our mission.  We hope you enjoy this video on universal connection:


 

FOCUS ON:
DDS Public Meeting Notice - 
Reducing Purchase of Service Disparities

The Department of Developmental Services will hold three public meetings to consult with stakeholders, including consumers and families, advocates, providers, and protection/advocacy agencies, to review purchase of service data and develop recommendations to help reduce disparities. Discussion areas will include identifying cultural barriers and challenges in obtaining regional center services and the areas that need clarification for people to understand the service delivery system, as well as, plans and recommendations to promote equity and reduce disparities in the purchase of services. 

Oakland, Monday, November 6, 2017 9:00AM - 12:00PM On-site translation will be provided in the following languages: Spanish, Vietnamese, and Cantonese State Council on Developmental Disabilities, Bay Area Office 1515 Clay Street, Auditorium Oakland, CA 94612

Los Angeles, Tuesday, November 7, 2017 9:00AM - 12:00PM On-site translation will be provided in the following languages: Spanish, Vietnamese, Korean, and Cantonese Ramona Hall Community Center 4580 N Figueroa Street Los Angeles, CA 90065

Fresno, Thursday, November 9, 2017 9:00AM - 12:00PM On-site translation will be provided in the following languages: Spanish, Hmong, and Russian Central Valley Regional Center 4615 N Marty Ave Fresno, CA 93722 *Conference room entrance and parking is located on the north east corner of the building.

For more information or to request translation accommodations, please contact DDS via phone at: (916) 654-2297 or by email at RCB@dds.ca.gov



New "Talk About Sexual Violence" Videos For Health Care Professionals

Healthcare professionals are on the front line and have a unique opportunity to act when sexual violence is suspected. The Arc's new Talk About Sexual Violence tools, created through a partnership between our National Center on Criminal Justice and Disability and the Special Hope project, make it easy for healthcare professionals to become a champion in the fight against sexual violence. The Talk About Sexual Violence website , brief videos, and supplemental materials equip health care professionals with the tools they need to create a safe place to have this conversation. Check it out!



COVERED CALIFORNIA: Enrollment Open




SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
SIGN UP FOR OUR CALIFORNIA ACTION ALERTS

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UPCOMING
 
 

November 2-4, 2017

Thursday, November 2, 2017
California Committee on Employment of People with Disabilities (CCEPD)
9:00 a.m. - 4:00 p.m.
Location: Department of Rehabilitation
721 Capitol Mall, Room 242
Sacramento, CA 95814
TELECONFERENCE INFORMATION
Teleconference: 1-888-989-6518
Participant Passcode: 5227813

November 6, 2017
Los Angeles, CA

March 11-13, 2018
The Arc & UCP California Public Policy Conference, Sacramento, CA
 
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FUNDING OPPORTUNITIES



 
In recognition that some service providers need to take steps towards modifying their services to come into compliance with the HCBS rules by March 2022, the 2017 Budget Act contains $15 million to fund necessary changes. 

Disparity Funds Program
$11 million to the Department to assist regional centers in the implementation of strategies to reduce purchase of service disparities.

National Council on Disability
$150,000

Services for Individuals with Developmental Disabilities
The purpose of this project is to increase community integration and independence of individuals with developmental disabilities and to improve the quality of home and community-based services (HCBS) by developing and testing one or more model approaches of a coordinated and comprehensive system that includes two interrelated core components for enhancing and assuring the independence, integration, safety, health, and well-being of individuals living in the community: (1) Community Monitoring and (2) Community Capacity Building. 
HHS 

More Grants Can Be Found at https://www.acl.gov/grants


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
The Coalition for Compassionate Care of California is hiring a Program Director to manage our initiative to spread community-based palliative care throughout California.  This position is  based in Sacramento, California.  Please see attached job announcement for more information.


The Chief Executive Officer/President enables PWI to adapt to and influence a dynamic environment. Working with and reporting to the Board of Directors, this role helps set policy and strategic leadership in concert with the mission, vision, purposes, and values of the organization. The CEO/President serves as the principal external representative of the organization and manages internal systems and complex processes of the organization to achieve effective and efficient operations. This position also directs budget development, fiscal responsibility and assures successful financial performance.

 
The Executive Director supports and advances the regional center's Vision and Strategic Plan and ensures that the operations and services of the regional center are aligned with that Vision and Plan. Under the policy direction of the Board of Directors, the Executive Director provides leadership to the staff and community, plans, organizes, develops and directs the operations and services of the regional center in accordance with the law, state regulations and the provisions of the Regional Center's contract with the California Department of Developmental Disabilities (DDS). 


The Senior Legislative Advocate position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Legislative Director. The Senior Legislative Advocate has expert substantive knowledge in 2 to 4 disability rights areas and a working knowledge of all areas covered by Disability Rights California.

Executive Director position open for Resources for Independence Central Valley (RICV). RICV is located in Fresno, CA and provides independent living services for five counties in Central California. It has numerous funding sources including grants and fee-for-service programs. Excellent salary and benefits for the Central California area.

The Legislative Advocate 2 is part of the legislative unit for the organization and is responsible for legislative advocacy activities. The person identifies, monitors and advocates for legislative activities that affect Californians with disabilities.

Would you like to advocate for the employment, independence and equality for people with disabilities? Are you interested in joining a council that ensures consumers and other stakeholders have a voice in California's vocational rehabilitation program? If so, then a position on the State Rehabilitation Council (SRC) may be for you! The SRC is recruiting for three perspective members representing:
  • The business, industry and labor community,
  • Disability advocacy groups, and,
    A current or former Department of Rehabilitation (DOR) consumer.
 
Alzheimer's Association Northern California and Northern Nevada, Legislative Assistant:
The Alzheimer's Association has a great opportunity for a Part-time Legislative Assistant to join our team in Sacramento, California. Working as a member of the dynamic State Public Policy & Advocacy Team, you will join a statewide network of professionals dedicated to our mission: to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through promotion of brain health. In this role, you will be responsible for coordination of the two-person State Policy Office, providing executive-level administrative support to the State Policy Director/registered lobbyist and remote support to five California chapters and volunteer advocates. The Legislative Assistant will assist in core legislative support functions such as scheduling legislative meetings, tracking and monitoring bills, drafting and disseminating letters of support/opposition, activating grassroots action alerts and event planning for annual State Advocacy Day.

Kern Regional Center Executive Director
The Executive Director, acting in the capacity of chief executive officer, is charged by the KRC Board of Directors with providing visionary and inspirational leadership as well as being responsible for the successful day to day management of all aspects of KRC's operations. The Executive Director works at the pleasure of Board and is subject to corporate bylaws, policies and procedures. The Executive Director is responsible for keeping the Board of Directors informed of the status of KRC's operations and for advising it in matters of policy. As the face of KRC, the Executive Director shall present a strong and compassionate image to the communities served by KRC as well as at the state and national level. 


California Head Start Association Professional Development Manager: California Head Start Association is seeking a creative and business savvy professional to serve as the Professional Development Manager (PDM), leading all aspects CHSA's conferences and learning programs. Benefits include employer paid medical/dental/vision for employees, a monthly stipend for transportation / parking, a Simple IRA matching contribution after one year, and a cell phone allowance. Position is located in Sacramento. Learn more and apply HERE. (6/4/17)

First 5 Association of California Communications DirectorWe are seeking an experienced Communications Director to lead the First 5 Association's media and outreach efforts. The Director will develop and implement communications strategies for the organization including media relations and online communications. The Director will also write and/or edit a wide range of communications including news releases, op-eds, letters to the editor, blogs, and fact sheets, policy briefs, and other communications that supports the breadth of First 5 efforts and policy areas. Learn more about this position and how to apply here. (6/8/17)


The Supported Life Institute seeks a Self Advocacy Project Coordinator that will work with, facilitate, empower and support dedicated self-advocates and individuals with intellectual and developmental disabilities and advisors and facilitators involved with Self Advocacy Chapters throughout the Sacramento region in the Peer Advocacy Connection Project (PAC) and the Facilitation Services Project (FSP).   To learn about these important programs visit the SLI website at: http://supportedlife.org    and click on the Peer Advocacy Connection link. If this position matches your goals and interests, please email: dfaletti@supportedlife.org
. for a full job description.  No phone calls please


Senior Policy Director - The Arc of Minnesota
PROFILE:
Provides overall leadership and management of organization-wide public policy advocacy efforts. Represents The Arc Minnesota in contacts with elected officials, government officials, the media, and members of the public and partner organizations. The goal of the position is to achieve our public policy goals by strengthening our relationships with elected and government officials on a state and federal level and increasing the skills and involvement of our membership in public policy and grassroots activities. 

SALARY:  
$65,000 - $80,000 annually 


A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.
 
mi Non-Profit Web Hosting provided by myhosting.com

The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494