MONDAY MORNING MEMO
News, Information, & Opportunities for California's Intellectual & Developmental Disability Community
July 10, 2017


IN THIS MEMO:
  • In Memoriam of Dwight Hansen
  • Policy: IEP Meetings Must Include Translation Services
  • Health & Wellness: Drinking While Pregnant Could Impact Grandchildren
  • Self-Advocacy: The Death Trap of SSI
  • Focus On: Protect Medi-Cal Funding
  • News, Articles, and Research
  • Jobs, Funding Opportunities, & More


In Memoriam of Dwight Hansen
by Carl London



Services were held Friday in Sacramento for long-time advocate Dwight Hansen.  Most recently, Dwight was the face of the Alliance Supporting People with Intellectual and Developmental Disabilities.

One of the state's leading experts on the Lanterman Act, Dwight began his career in politics and legislation as a Political Science student at UC-Davis, becoming involved in Democratic campaign efforts and as a legislative staffer.  He then became an advocate for the California Building Industry Association before settling in as an advocate for community-based agencies serving people with IDD.  He worked for the California Disability Services Association (previously called the California Rehabilitation Association), before helping to start the Alliance, for whom he was a tenacious advocate.

He was intimately involved in the state's efforts of "System Reform" in the late 1990s; a leader in the defeat of legislation that would have forced unionization of community-based agencies' workforce; key in developing the "Family Caucus" (of Assembly Members Barbara Matthews, Betty Karnette, Fran Pavley and Russ Bogh) that pushed through a $110 Mil rate increase for community-based programs in 2006; instrumental in the $400 Mil-plus funding effort of 2016; and helpful in introducing and shaping multiple pieces of legislation throughout his career.  He also helped pursue the closure of California's remaining outdated institutions, the Developmental Centers, after evidence of abuse and extensive costs to the system.  Gov. Brown announced they will be finally closed in 2022.

Former Assembly Member Shannon Grove spoke at his service, calling Dwight a "hero" to consumers, families and programs in California.  Both the State Senate and Assembly recently adjourned in his memory.  You can see Assembly Member Tom Lackey's tribute to him here: Adjournment in Memory for Dwight Hansen.

His passing came after a lengthy battle with cancer, and he leaves behind two daughters, Shannon and Erin, along with five brothers and sisters and their extended families.

His daughters have requested that any contributions made in his name be targeted to Easter Seals, Elk Grove ACT, Prostate Cancer research or any favorite charity of one's choosing.

Dwight was a friend to the Arc of California, and he will be missed by many.

Dwight Hansen speaking at the recent KEEP THE PROMISE rally.

POLICY & ADVOCACY

IEP Meetings: Translation Services are Essential
Parents whose first language isn't English and who have children with disabilities can face major obstacles advocating for the education services and supports their children need.

State law requires school districts to take any action necessary to assure that parents and guardians understand what is going on during their children's individualized education plan (IEP) meetings - and to give the parents copies of the IEP in the parents' primary language. But it doesn't always happen, and it can take long periods of time for the schools to give the parents the IEPs.

We're supporting Senate Bill 354 by Senator Anthony Portantino, sponsored by Disability Rights California, to take concrete steps to make the IEP meaningful and effective for their children and their parents.

SB 354 will require school districts to communicate in the parents' native language throughout the IEP process and to give the parents copies of the IEP on other key documents in their native language
Greg deGiere
Director of Policy & Advocacy, The Arc/UCP California Collaboration
 within 45 days of the IEP team meetings, among other requirements. 

The bill passed the Senate 30-6 and will be heard in the Assembly Education Committee this Wednesday.



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Teresa Anderson, Prevention Coordinator
HEALTH & WELLNESS ACTIVITIES

New Research on Transgenerational Effects of Prenatal Exposure to Alcohol 

Teresa Anderson, MPH 

Fetal alcohol spectrum disorders (FASDs) affect an estimated 2% - 5% of children in the US. FASDs are a range of behavioral, intellectual and physical disabilities that are a direct result of drinking alcohol during pregnancy. There is no known safe amount of alecohol to drink during pregnancy. Over forty years of published research clearly demonstrates that alcohol is a neurotoxin that has detrimental effects on fetal development. Recent research suggests drinking alcohol during pregnancy can lead to multigenerational adverse outcomes due to complex nervous system changes. The new study by Kelly Huffman, psychology professor at the University of California, Riverside, titled "Prenatal Ethanol Exposure and Neocortical Development: A Transgenerational Model of FASD," was published in the journal Cerebral Cortex. To read more about this new research visit https://eurekalert.org/pub_releases/2017-07/uoc--daw070717.php

The Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD) is a consortium dedicated to developing effective interventions and treatment approaches for FASDs. According the CIFASD "The consequences resulting from prenatal alcohol exposure are wide-ranging and are major public health issues. The goal of the research proposed by the CIFASD is to enhance the diagnosis of fetal alcohol spectrum disorders across the range of outcomes, using a multisite, multidisciplinary consortium consisting of both basic science and clinical projects."
To learn more about the current research projects visit: http://cifasd.org


Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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CUTTING THROUGH THE FOG
Eric Gmeinder,
Guest Writer and Self-Advocate

A Self-Advocacy Column 
by Eric Gmeinder

The Death Trap of SSI

In the fall of 2010, after I graduated from high school, I began to receive Social Supplemental Income (SSI), like most people with intellectual disabilities. I had problems with managing my anger and, to some extent, being able to leave my house. I clearly wasn't ready for a job, and at first I liked the "freedom" of having so much more money than my old allowance.

Now I spend a little of every day stressing out about my life, and searching high and low for ways to make a living wage. Until a point in the twentieth century, persons with intellectual disabilities were locked up in their caregivers' homes for their entire lives, and I have a constant fear about being not far from that situation. I am very dissatisfied with my current life and have a very clear idea of how I want things to go, but such a small bank account stands in my way. And getting a job is a lot harder than it needs to be, because employers would assume that my lack of work experience and advanced degrees are from lack of willpower as opposed to said psychological problems.

Maybe my autistic perception is playing tricks on me, but it seems like most of the Boomerang Generation still love their parents when they come back home to live. Right now, that's hard for me. I can't talk to them for more than ten seconds anymore without getting stressed out. So far I have had only two opportunities to move into places I can afford on SSI. On one instance, the roommate treated me badly and then kicked me out; the other is a current opening in Sacramento for Section 8 housing.

Sometimes I think my parents would prefer that I try to tailor my life to living on SSI. As much as I hate my situation, I'd rather making a living wage first, because otherwise most things people have in their adult lives are out of the question.

When it gets too much and I use the Crisis Text Line (741741), the person at the other end says, "It must be very frustrating." What an understatement. As of this writing, I am trying to get "work experience" as I attend Futures Explored, to make up for what I didn't do in college. I am doing very well in the program and hope to build an equally good reputation at a media company, so my plans for the future can finally be fulfilled.




FOCUS ON: Protect Medi-Cal
Senate Policy to Slash Medicaid Funding Would Endanger Calif.'s Enrollment and Coverage Protections

Part Eight of NHeLP's 12-Part Blog Series

Blog post and Issue Brief on the Importance of Medi-Cal's Enrollment and Continuity Protections and How Proposed Cuts to Federal Medicaid Funding Would Harm Vulnerable Communities.  

Click here to read this blog post in full.




SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
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UPCOMING
 
 
 

July 20-23
Sacramento Convention Center 

July 30-August 5th
Angela Center, Santa Rosa
Gamaliel Leadership Training
Teaching ordinary citizens to unleash the power within themselves 
Phone: 312-357-2639 E-mail: 
info@gamaliel.org 
Web: www.gamaliel.org 

October 5-6, 2017
31st Annual Supported Life Conference
"Designing Dreams: Blueprint for a Meaningful Life"
Crowne Plaza Sacramento Northeast

November 2-4, 2017
 

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FUNDING OPPORTUNITIES



 

Services for Individuals with Developmental Disabilities
The purpose of this project is to increase community integration and independence of individuals with developmental disabilities and to improve the quality of home and community-based services (HCBS) by developing and testing one or more model approaches of a coordinated and comprehensive system that includes two interrelated core components for enhancing and assuring the independence, integration, safety, health, and well-being of individuals living in the community: (1) Community Monitoring and (2) Community Capacity Building. 
HHS 

The Following Grants Can Be Found at https://www.acl.gov/grants

HHS-2017-ACL-AOD-DDUC-0220
University Centers of Excellence in Developmental Disabilities Diversity Fellowships
HHS-ACL
Posted
05/05/2017
07/11/2017
PAR-16-215
Preclinical Research on Model Organisms to Predict Treatment Outcomes for Disorders Associated with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
09/07/2019
PAR-16-216
Outcome Measures for Use in Treatment Trials of Individuals with Intellectual and Developmental Disabilities (R01)
HHS-NIH11
Posted
04/26/2016
05/07/2019
HHS-2017-ACL-AOD-DNIQ-0221
Living Well-Model Approaches for Enhancing the Quality, Effectiveness and Monitoring of Home and Community Based Services for Individuals with Developmental Disabilities
HHS-ACL
Posted
05/25/2017
07/24/2017
ED-GRANTS-051917-002
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: Model Demonstration Projects To Improve Algebraic Reasoning for Students With Disabilities in Middle and High School CFDA NUmber 84.326M
ED
Posted
05/19/2017
07/03/2017
ED-GRANTS-052217-002
OSERS: OSEP: National Center for the Development and Dissemination of Digital Open Educational Tools and Resources Supported by Evidence to Enhance Personnel Preparation and Professional Development for Educators of Students with Disabilities CFDA 84.325E
ED
Posted
05/22/2017
07/06/2017






HHS-2017-ACL-CIP-DNTC-0233
Strengthening Coordinated Transportation Systems for People with Disabilities and Older Adults
HHS-ACL
Posted
05/26/2017
07/31/2017
ED-GRANTS-041917-001
OSERS: OSEP: Personnel Development to Improve Services and Results for Children with Disabilities: Early Childhood Personnel Center CFDA Number 84.325B
ED
Posted
04/19/2017
06/05/2017
HHS-2017-ACL-AOD-DDTI-0218
Minority Serving Institutions Partnership Planning Grants
HHS-ACL
Posted
05/05/2017
07/06/2017
HHS-2017-ACL-AOD-HAVA-0231
Help America Vote Act (HAVA)
HHS-ACL
Posted
05/18/2017
07/12/2017
PD-08-1698
Developmental Sciences
NSF
Posted
03/23/2009
07/17/2017
PAR-15-149
Enhancing Developmental Biology Research at Academic Research Enhancement Award Eligible Institutions (R15)
HHS-NIH11
Posted
03/23/2015
09/11/2017
PAR-15-196
Developmental AIDS Research Center on Mental Health and HIV/AIDs (P30)
HHS-NIH11
Posted
05/01/2015
09/14/2017
PAR-16-396
NICHD Laboratory of Developmental Biology (R24)
HHS-NIH11
Posted
08/11/2016
05/30/2019
PAR-17-238
Developmental Centers for AIDS Research (P30)
HHS-NIH11
Posted
03/30/2017
08/17/2019
ED-GRANTS-052417-002
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Educational Materials in Accessible Formats for Children and Students with Visual Impairments and Print Disabilities CFDA Number 84.327D
ED
Posted
05/24/2017
07/10/2017
ED-GRANTS-052217-003
OSERS: OSEP: Personnel Development to Improve Services and Results for children with Disabilities: National Center for Improving Teacher and Leader Performance to Better Serve Children with Disabilities CFDA Number 84.325A
ED
Posted
05/22/2017
07/06/2017
HHS-2017-ACL-AOD-DDTI-0219
Diversity and Inclusion Training Action Plan Implementation Grant
HHS-ACL
Posted
05/09/2017
07/10/2017
ED-GRANTS-042117-001
OSERS: OSEP: Educational Technology, Media, and Materials for Individuals with Disabilities: Stepping-up Technology Implementation CFDA Number 84.327S
ED
Posted
04/21/2017
06/05/2017
ED-GRANTS-052417-003
OSERS: OSEP: Research and Development Center on Developing Software to Adapt and Customize Instruction in Digital Learning Environments to Improve Results for Children with Disabilities CFDA Number 84.327A
ED
Posted
05/24/2017
07/10/2017
PD-17-5342
Disability and Rehabilitation Engineering
NSF
Posted
02/22/2017
10/20/2017
ED-GRANTS-050217-001
OSERS-OSEP: Technical Assistance and Dissemination to Improve Services and Results for Children with Disabilities: National Technical Assistance Center for Inclusive Practices and Policies CFDA Number 84.326Y
ED
Posted
05/02/2017
06/16/2017
HHS-2017-ACL-NIDILRR-REGE-0208
Rehabilitation Engineering Research Centers (RERCs) Program: RERC on Technologies to Promote Exercise and Health Among People With Disabilities
HHS-ACL
Posted
05/31/2017
07/31/2017
ED-GRANTS-051917-001
OSERS: OSEP: Technical Assistance and Dissemination To Improve Services and Results for Children With Disabilities: National Center To Enhance Educational Systems To Promote the Use of Practices Supported by Evidence CFDA Number 84.326K
ED
Posted
05/19/2017

 


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
 
Would you like to advocate for the employment, independence and equality for people with disabilities? Are you interested in joining a council that ensures consumers and other stakeholders have a voice in California's vocational rehabilitation program? If so, then a position on the State Rehabilitation Council (SRC) may be for you! The SRC is recruiting for three perspective members representing:
  • The business, industry and labor community,
  • Disability advocacy groups, and,
    A current or former Department of Rehabilitation (DOR) consumer.

Kern Regional Center Executive Director
The Executive Director, acting in the capacity of chief executive officer, is charged by the KRC Board of Directors with providing visionary and inspirational leadership as well as being responsible for the successful day to day management of all aspects of KRC's operations. The Executive Director works at the pleasure of Board and is subject to corporate bylaws, policies and procedures. The Executive Director is responsible for keeping the Board of Directors informed of the status of KRC's operations and for advising it in matters of policy. As the face of KRC, the Executive Director shall present a strong and compassionate image to the communities served by KRC as well as at the state and national level. 


California Head Start Association Professional Development Manager: California Head Start Association is seeking a creative and business savvy professional to serve as the Professional Development Manager (PDM), leading all aspects CHSA's conferences and learning programs. Benefits include employer paid medical/dental/vision for employees, a monthly stipend for transportation / parking, a Simple IRA matching contribution after one year, and a cell phone allowance. Position is located in Sacramento. Learn more and apply HERE. (6/4/17)

First 5 Association of California Communications DirectorWe are seeking an experienced Communications Director to lead the First 5 Association's media and outreach efforts. The Director will develop and implement communications strategies for the organization including media relations and online communications. The Director will also write and/or edit a wide range of communications including news releases, op-eds, letters to the editor, blogs, and fact sheets, policy briefs, and other communications that supports the breadth of First 5 efforts and policy areas. Learn more about this position and how to apply here. (6/8/17)


The Supported Life Institute seeks a Self Advocacy Project Coordinator that will work with, facilitate, empower and support dedicated self-advocates and individuals with intellectual and developmental disabilities and advisors and facilitators involved with Self Advocacy Chapters throughout the Sacramento region in the Peer Advocacy Connection Project (PAC) and the Facilitation Services Project (FSP).   To learn about these important programs visit the SLI website at: http://supportedlife.org    and click on the Peer Advocacy Connection link. If this position matches your goals and interests, please email: dfaletti@supportedlife.org
. for a full job description.  No phone calls please


Senior Policy Director - The Arc of Minnesota
PROFILE:
Provides overall leadership and management of organization-wide public policy advocacy efforts. Represents The Arc Minnesota in contacts with elected officials, government officials, the media, and members of the public and partner organizations. The goal of the position is to achieve our public policy goals by strengthening our relationships with elected and government officials on a state and federal level and increasing the skills and involvement of our membership in public policy and grassroots activities. 

SALARY:  
$65,000 - $80,000 annually 


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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494