April 24, 2017

Teresa Anderson, Prevention Coordinator

Autism Awareness Month; The Need for Systemic Change
Teresa Anderson, MPH 

In light of recent events involving the arrest and detention of a 10-year old boy with autism the need for systemic change across schools, the judicial system and law enforcement has once again been demonstrated. Unfortunately as an advocacy organization serving people with intellectual and developmental disabilities (I/DD) the details of this particular incident are all too familiar and could essentially be clipped out of the arresting officers incident report and placed in a number of others virtually unchanged.  The systems failed this child, as has occurred for many children with I/DD, at several points throughout the experience.  No question that outrage is the initial response but what happens after the outrage for one child, one family or one incident wears off? Hopefully a deeper look at the systems that failed, how they failed, why they failed and what changes can be made to prevent these traumas from continuing. 

A brief description of this particular incident begins with a child with autism communicating through disruptive behavior and school personnel not having adequate resources (training, support, administrative policies) to respond to the individual needs of the child and his family. The school personnel response resulted in law enforcement involvement in behavior management for a 10 year old - law enforcement conducted a threat assessment and determined the student was low-risk. Nothing changed, the child stayed in the same "educational" environment, communicated with the same disruptive behavior toward the same paraprofessional and the school personnel and the family interaction was minimal. Eventually due to disruptive behavior a 10 year old child was expelled from school (system failure), the paraprofessional pressed charges reporting the child "scratched, kicked and punched" him. 

The paraprofessional pressed charges against the child stating: "he has had plenty of opportunities to change his behavior and he has not."  Following policy and procedure the Deputy in the case sent a Take and Hold warrant to the State Attorney's Office, which was approved (another system failure).  Then the warrant went to the Judge's Office and was approved and sent to the Sheriff's Office for service (another system failure). Months later, the child was asked to return to the campus for testing. Once there he struggled to maintain his behavior during the testing so his mother suggested they leave.  The school alerted the Deputy that the child was on campus and given the warrant was still active he was arrested. The paraprofessional attempted to drop the charges after the arrest stating: "I pressed charges in order to get the ball rolling to get his mother to realize he needs additional help."  [partial statement]  To read the details of this case visit the links below:

Given the magnitude of systemic change that is needed and the lives that are impacted by rigid one-size fits all policies and protocols it is clear that a great deal of work still needs to be done to increase awareness.  What is all too often lost is that individuals with autism (and other I/DD) are at greater risk for injustice because so many of the people they interact with daily - teachers, co-workers, law enforcement, medical personnel, community businesses, etc. - are not aware of their unique needs or how to respond in different situations.  For more information on increasing awareness of autism for teachers, law enforcement, judicial systems, health care providers, emergency responders, etc. visit:

Teresa Anderson, MPH
The Arc California
Prevention Coordinator

$500 Million Will Be Discussed  
Jordan Lindsey
Executive Director,
The Arc of CA
This Wednesday, April 26th, the California Assembly Budget Sub-Committee on Health & Human Services will discuss a proposal which is a top priority for The Arc of California and developmental disability advocates throughout the state.

Currently, the state spends more than $500 million on the remaining developmental centers, including services for the residents, staff, and maintaining the facilities.  When the developmental centers close in the next few years we don't want to see that money absorbed into the state's general fund, instead we want the money to be kept in our system and spent on community services.  That amount of money would be a lifesaver for community service providers that are continuously challenged by inadequate reimbursement rates, and would make a significant difference for people with intellectual and developmental disabilities and their families.

The Lanterman Coalition, including 24 statewide organizations representing people with I/DD in California, has made this issue one of our top priorities.  As Chair of the Coalition I will be speaking at a press conference this Wednesday before the hearing, as well as to the legislators in the committee hearing.



What: Press Conference with legislators
When: 1:30PM 
Where: West steps of the Capitol
Why: To show support in numbers for the press conference (if you would like to speak at the press conference and tell your story then please contact Jordan Lindsey at

What: Committee budget hearing
When: 2:30PM 
Where: Room 444 in the Capitol
Why: To tell your story to legislators why funding for community services needs to be increased.

If you are unable to attend in person then please call the office of the Committee members below and say: Funding for developmental disability services needs to be increased, and the existing funding for developmental centers should be kept in our system to support those community services. 

Dr. Joaquin Arambula, Chair of Budget sub 1 on Health & Human Services, Capitol Office, (916) 319-2031
Assemblyman Matthew Harper (Newport Beach, Laguna Beach, Huntington Beach), (916) 319-2074
Assemblywoman Blanca Rubio (Azusa, Glendora, West Covina), (916) 319-2048
Assemblyman Jim Wood (Santa Rosa, Eureka, Shasta), (916) 319-2002

Jordan Lindsey
Executive Director

Letter Sent To California Congressional Delegation

The Lanterman Coalition, consisting of 24 statewide organizations representing Californians with intellectual and developmental disabilities, opposes the American Health Care Act.  To view the letter The Arc and other coalition members signed on to, click here.



Tim Hornbecker, Director of Advocacy and Community Organizing
More Advocacy and More Often!

I attended a fundraising auction this last weekend for an incredible non-profit providing Health Care around the world. The mantra for the evening, as with all charitable auctions, "Bid High and Bid Often!"  So this week is your opportunity for more advocacy and on two days! If you can't come to Sacramento, heed our Public Policy Director Greg deGiere's request for you to at least make phone calls.

Greg has sent you an Action Alert from The Arc and United Cerebral Palsy California Collaboration to attend the Wednesday  April 26th Press Conference with legislators (1:30 PM) and the 2:30 PM Assembly Budget Subcommittee on Health and Human Services. We want the over $500 million saved by the eventual closure of our State of California Developmental Centers to help pay for adequate and inclusive services for those former residents and those already in the community with Intellectual and Developmental Disabilities!

But the day before, on Tuesday, April 25this Gamaliel of California's Second Annual Legislative Day. The Arc of California collaborates with Gamaliel to provide Community Organizing and Advocacy training for our self advocates and family members statewide, in order to better tell their stories and become community leaders. The Arc of California has gone outside the disability organizations to get other non-profits, Unions (Amalgamated Transit Union and SEIU), Education Associations, Health and Senior Services and Religious Groups to join forces with us for a louder voice and more power.

See below the Gamaliel of California's schedule for April 25th. Their members will be advocating for better housing and transportation for low income families, seniors and people with disabilities. We will be visiting legislators with them, also asking for increased funding in order to pay for the rising minimum wage mandates (support AB 279) and saving that $500 million for people with developmental disabilities! 
If you have questions, contact me at or call me on my cellphone (415) 850-8037.
Advocate even more and often!

Everybody In, Nobody Out
Policies should protect People, not hurt People
We Must Speak UP to those who represent us.

Join us for our Second Annual Day at the Capitol
April 25, 2017 (Tuesday)
Agenda for the Day:  
10:00 am
Orientation and Briefing--SEIU 1021 Offices
1130 K Street 3rd Floor, Sacramento, CA

11:30 am
Legislative Visits

There will be box lunches available (a love donation to defray costs is appreciated)  Please bring your own water bottle.
RSVP here:

For more information:  

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Tim Hornbecker 
Director of Advocacy and Community Organizing
The Arc California



The Arc's 2017 National Convention
San Diego, California | November 1 - 4, 2017

Innovate | Motivate | Collaborate

Thank you for your interest in presenting at The Arc's 2017 National Convention.
This year's convention will be held at theSheraton San Diego Hotel & Marinaa 
in San Diego, CA on November 1-4, 2017. 

People with disabilities, their families, chapters of The Arc staff and volunteers, and others in our field and the business community need innovative solutions that will fuel our motivation and spark our spirit for collaboration. We are looking for knowledgeable, experienced presenters with: 
  • Expertise in critical issues important to people with intellectual/developmental disabilities (I/DD) and their families.
  • Experiences in fields and environments outside the disability community that highlight light novel perspectives and strategies that may translate.
  • A proven track record of presenting at national/international meetings in an engaging and interactive manner.
  • The ability to deliver information to a diverse audience including people with I/DD, families, professionals, business leaders and members of boards of directors.
If you have the passion to educate and energize the over 700 individuals who enthusiastically carry out our mission and values every day we invite you to submit a proposal to speak at The Arc's National Convention. 

Don't delay - all proposals must be submitted no later than 
11:59 p.m. EST on Friday, April 21, 2017.

To begin, either create a new account or login below if you already have an account. You may return to your submission page to make changes until the deadline for the call closes on Friday, April 21st at 11:59 pm EST. 

If you have any questions, please contact Kerry Mauger at The Arc will contact you by May 22nd to inform you about the status of your submission. 

Click here for proposal submission guidelines.

Public Policy Report

The Great Recession and the resulting state revenue slump were catastrophic to many different services for people with intellectual and all developmental disabilities. Special education was no exception, as schools laid off the skilled teachers needed for this vital service.

Special education has had a particularly difficult time recovering from the hits it took. Even though much of the state funding has been restored, many of the laid-off teachers now have retired or moved on to other jobs, leaving a severe shortage of special ed teachers.

We've been supporting a wide variety of bills to correct this special-ed teacher shortage. Last week we testified for one particularly innovative bill that goes after one of California's biggest problems with recruiting and retaining teachers - the cost of housing

Assembly Bill 45 by Assemblymember Tony Thurmond, himself a former special-ed teacher, will create a California School Employee Housing Assistance Grant Program. The California Housing Finance Agency will lend money to school districts to develop affordable rental housing for teachers and other school employees.

AB 45 passed the Assembly Education Committee 5-2 with our support last week.

In a tight budget year, the bill's prospect for final passage later this year are uncertain.

Greg DeGiere
Public Policy Director


July 30-August 5th
Angela Center, Santa Rosa
Gamaliel Leadership Training
Teaching ordinary citizens to unleash the power within themselves 
Phone: 312-357-2639 E-mail: 

October 5-6, 2017
31st Annual Supported Life Conference
"Designing Dreams: Blueprint for a Meaningful Life"
Crowne Plaza Sacramento Northeast

Avalre Models Medicaid Per Capita Cap on Duals
New analysis by Avalere Health shows sensitivity of Medicaid per capita cap proposals on dual eligible beneficiaries, with the risk of shifting costs to Medicare.
A Chart Prepared by the Center On Budget and Policy Priorities
Legislative Analyst's Office Report available:
The2017-18Budget:Proposition 98 Education Analysis
Contact  916-445-4656


By the Center for Business Innovative Research (CBIR)

The following grant opportunity postings were made on the Find Opportunities service:

California Achieving a Better Life Experience (ABLE) Act Board for People with Disabilities is now seeking Investment Consultant Services. All interested in responding to this Request for Proposals ("RFP") may find it on the Cal E-Procure website. Please search for the RFP using Event IE: 4330.

HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Partnerships to Achieve Health Equity Synopsis 1
USDOJ - Department of Justice Office on Violence Against Women OVW FY 2017 Transitional Housing Assistance Grants for Victims of Sexual Assault, Domestic Violence, Dating Violence and Stalking Synopsis 1
HHS - Department of Health and Human Services Substance Abuse and Mental Health Services Adminis Grants to Expand Substance Abuse Treatment Capacity in Family treatment Drug Courts [Short Title:  Family Treatment Drug Courts (FTDCs)] Synopsis 1
HHS - Department of Health and Human Services Health Resources and Services Administration Area Health Education Centers Program Synopsis 1
HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Announcement of Anticipated Availability of Funds for Embryo Donation and/or Adoption Grant Synopsis 1
HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Announcement of Anticipated Availability of Funds for Safety Research of Currently Recommended Immunizations in the United States and Other Vaccine Prototypes Synopsis 1
HHS - Department of Health and Human Services Health Resources and Services Administration Maternal and Child Environmental Health Collaborative Improvement and Innovation Network (CoIIN) Synopsis 3


The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
Jobs Page Links: Click Here

A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.

The Legislative Director position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Advocacy Director. The Legislative Director provides overall direction to DRC's public policy activities with the goal of increasing DRC's legislative presence.  The position supervises legislative advocates.

The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814


Advocates for people with intellectual and all other developmental disabilities and their families since 1950.


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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494